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Lots of great advice here. For what it's worth, mine is: - Resist the urge to build bespoke technologies/solutions. You need durable techs that won't leave he
by Waterluvian 3y ago
Lots of great advice here. For what it's worth, mine is:
- Resist the urge to build bespoke technologies/solutions. You need durable techs that won't leave her discouraged when she feels the need to lean on you a lot for support. I've seen it before: it's too easy to accidentally become her assistive device. You need to be your own person, too!
- Encourage her to focus on changing habits now so that she isn't faced with both the terribleness of losing eyesight and stress of learning new habits. For example: can she start checking out audio books? Does she use Siri/Alexa/Whatever regularly? Can she scratch the quiz itch in other ways? Jeopardy! is great because you can be blind and still follow 98% of it.
- Could she enable assistive modes now to get used to them and use her own eyesight to help learn how to master them?
- What opportunities are there for this also becoming a new, exciting chapter in life? How deep has she explored the enormous world of music?
- bluefirebrand 3y agoA lot of good advice here but > What opportunities are there for this also becoming a new, exciting chapter in life I strongly, strongly advise caution with even bringing up a hint of "losing your eyesight could be an exciting new adventure!!" It's pretty poor taste to try and find the upside of someone going through something that is likely traumatic for them. If they find some upside on their own you can encourage it, but that's all.
- Waterluvian 3y agoFully agree, which makes it feel weird to re-read my own comment and for it to sound so off-tone. If I were to re-write the comment I'd say something along the lines of, "In time, there may be new opportunities worth exploring." What's on my mind is that while by no means one ought to give up on the things in their life that may provide a sense of identity, those don't have to be your only possible source of identity going forward. Even that requires the most careful and gentle of touches. Identity is so important and not something you can just change so suddenly.
- fsckboy 3y agoI found a bit of humor in this: >Does she use Siri/Alexa/Whatever regularly? ... Jeopardy! is great because you can be blind and still follow 98% of it. you just suggested Alexa Trebek!
- Waterluvian 3y ago"What is an unintentional pun?"