5 ms·

My fiance had intercranial hypertension. Which is a complex way of saying "we don't know the root cause of why your spinal fluid is causing so much pressure in

My fiance had intercranial hypertension. Which is a complex way of saying "we don't know the root cause of why your spinal fluid is causing so much pressure in your head that you want to take a ice pick and poke a hole in it!" which also decreases EVERYTHING due to brain pressure, so more tired, less ability to think, less sensitive to all senses, less emotional control (especially because you're in constant pain / fear of sudden motions causing a lot of pain). Hard to explain to people that she's not just lazy. Thankfully a relatively easy procedure helped and now she's on the road to a slow recovery. Edit: Maybe it is just empathy. It is hard to see my tax money going towards turning brown kids into skeletons, and not making people who's life already sucks suck a lot less.

folkrav 3y ago
> Which is a complex way of saying "we don't know the root cause of why [...]" A thing a lot of people don't seem to be aware about modern medicine. We can treat many things, we know a whole lot more than we used to, but a lot of this knowledge is often incomplete. Many of the body's systems are very badly understood. Treatment for most of those issues is symptom management more than anything else.
- SoftTalker 3y ago
  This is true. We know experimentally that certain drugs are helpful for certain symptoms. In some cases we have some idea of why they work, but far more often than you might think, it's a case of "we know it works but really don't know why."
226_ebro_treaty 3y ago
Hi, this was enlightening. I'm a dude who has IIH myself for now almost half a decade and I was at no point told this could reduce my cognitive abilities. I take Diamox just in case (to reduce the intracranial fluid). It was a heering experience to get this diagnosed. One day all of a sudden my head started hurting and didn't stop, for months. But I had no other symptoms so doctors didn't take me seriously and my neurologist appointment was several months AFTER the onset of the symptoms (yes, months!). That was until I accidentally went to an ER ophthalmologist who saw my optic eye nerves and went holy smokes. I went through so much pain. All of this at a very young age. I developed severe anxiety and depression. I haven't done well academically speaking compared to my peers. I feel shitty about this everyday, since all of my friends are better off than me. I'm on HN but not in IT (I am inept at programming, tried several times, I am just not capable of it), but various friends of mine are in IT and make 5x my salary and it makes me feel worthless, because they enjoy life at a different level than I do because of their income. Nicer homes, cars, stability in finances, etc... It makes me feel like I'm just not worthy of life because hey, if they can make it, why can't I? I am supposidly as capable as they are... right? Thank you for making me aware I have an illness that can make me a bit less capable compared to my peers. I'm going to use this to be less harsh on myself and hopefuly find something in which I find myself better off one day within my own limitations. Thank you.
- petabytes 3y ago
  I've had something so very similar. At one point I started having a lot of 'pressure' headaches after coming of Zoloft. It lasted for about 4 months. Just constant throbbing pain in the temples, and prevented me from doing critical thinking or working on my software projects. It was a horrible brain fog that basically crippled me mentally. I could do physical labor fine, but anything requiring me to use mental skill just left me sitting there like I was brain dead. After 4 months I went to the ER, got a MRI scan, went to a neurologist, and none of them could figure it out other than say it's because of anxiety. They put me on some blood pressure medication, and it seemed to mostly go away over a few months. I still have some headaches with the same type of pain but not lasting all day.
  - 226_ebro_treaty 3y ago
    I am glad to hear they are gone (in their original form). must've been an awful experience. It's incredible what the mind can do sometimes. Take care of yourself and always be your own advocate at the Doctor's!
- digging 3y ago
  > It makes me feel like I'm just not worthy for life because hey, if they can make it, why can't I? Honestly though, nobody should have to earn a decent living, regardless of level of ability. They're alive, and not by choice, so they should be able to enjoy it. Meritocracy is just cruelty when extended to the conditions of one's life - we want those with the fewest intrinsic resources be made to suffer? I don't.
  - Projectiboga 3y ago
    This element of our society being so stingy with our bottom economic half hurts everyone as that half spend their money quickly and locally. The cutting taxes of the wealthy since "they'll invest more in 'creating jobs' and grow the economy" hasn't worked. That 'investment' went mostly to sweatshops in other countries. This is compounded with other draining tax breaks lije carried interest and the scam where corps by their own shares at a tax advantaged situation. The middle class has shrunk and standards of living have declined for I'd guess 2/3 or more of Americans.
mptest 3y ago
It's empathy, but also literally the smarter/cheaper/more humane way to do healthcare, free at point of service. An ounce of prevention vs a pound of cure. what really makes me see red is the fact that how we do healthcare is worse, more expensive, and less helpful than were it given to all, and STILL, people vote against universal health care. The only benefit to our system as yet is its ability to enrich a few rent seeking billionaires in the middle of us and our doctors. But because crab in a bucket Billy Joe in rural kansas "don't wanna pay for sum un elses helfcare". Evil, stupid, individualistic self harming fucking animals we are in the US. Barbarians to let our citizens in the richest country in the world go bankrupt because they got sick. Evil.

folkrav 3y ago

> Which is a complex way of saying "we don't know the root cause of why [...]" A thing a lot of people don't seem to be aware about modern medicine. We can treat many things, we know a whole lot more than we used to, but a lot of this knowledge is often incomplete. Many of the body's systems are very badly understood. Treatment for most of those issues is symptom management more than anything else.

SoftTalker 3y ago
This is true. We know experimentally that certain drugs are helpful for certain symptoms. In some cases we have some idea of why they work, but far more often than you might think, it's a case of "we know it works but really don't know why."

226_ebro_treaty 3y ago

Hi, this was enlightening. I'm a dude who has IIH myself for now almost half a decade and I was at no point told this could reduce my cognitive abilities. I take Diamox just in case (to reduce the intracranial fluid). It was a heering experience to get this diagnosed. One day all of a sudden my head started hurting and didn't stop, for months. But I had no other symptoms so doctors didn't take me seriously and my neurologist appointment was several months AFTER the onset of the symptoms (yes, months!). That was until I accidentally went to an ER ophthalmologist who saw my optic eye nerves and went holy smokes. I went through so much pain. All of this at a very young age. I developed severe anxiety and depression. I haven't done well academically speaking compared to my peers. I feel shitty about this everyday, since all of my friends are better off than me. I'm on HN but not in IT (I am inept at programming, tried several times, I am just not capable of it), but various friends of mine are in IT and make 5x my salary and it makes me feel worthless, because they enjoy life at a different level than I do because of their income. Nicer homes, cars, stability in finances, etc... It makes me feel like I'm just not worthy of life because hey, if they can make it, why can't I? I am supposidly as capable as they are... right? Thank you for making me aware I have an illness that can make me a bit less capable compared to my peers. I'm going to use this to be less harsh on myself and hopefuly find something in which I find myself better off one day within my own limitations. Thank you.

petabytes 3y ago
I've had something so very similar. At one point I started having a lot of 'pressure' headaches after coming of Zoloft. It lasted for about 4 months. Just constant throbbing pain in the temples, and prevented me from doing critical thinking or working on my software projects. It was a horrible brain fog that basically crippled me mentally. I could do physical labor fine, but anything requiring me to use mental skill just left me sitting there like I was brain dead. After 4 months I went to the ER, got a MRI scan, went to a neurologist, and none of them could figure it out other than say it's because of anxiety. They put me on some blood pressure medication, and it seemed to mostly go away over a few months. I still have some headaches with the same type of pain but not lasting all day.
- 226_ebro_treaty 3y ago
  I am glad to hear they are gone (in their original form). must've been an awful experience. It's incredible what the mind can do sometimes. Take care of yourself and always be your own advocate at the Doctor's!
digging 3y ago
> It makes me feel like I'm just not worthy for life because hey, if they can make it, why can't I? Honestly though, nobody should have to earn a decent living, regardless of level of ability. They're alive, and not by choice, so they should be able to enjoy it. Meritocracy is just cruelty when extended to the conditions of one's life - we want those with the fewest intrinsic resources be made to suffer? I don't.
- Projectiboga 3y ago
  This element of our society being so stingy with our bottom economic half hurts everyone as that half spend their money quickly and locally. The cutting taxes of the wealthy since "they'll invest more in 'creating jobs' and grow the economy" hasn't worked. That 'investment' went mostly to sweatshops in other countries. This is compounded with other draining tax breaks lije carried interest and the scam where corps by their own shares at a tax advantaged situation. The middle class has shrunk and standards of living have declined for I'd guess 2/3 or more of Americans.

mptest 3y ago

It's empathy, but also literally the smarter/cheaper/more humane way to do healthcare, free at point of service. An ounce of prevention vs a pound of cure. what really makes me see red is the fact that how we do healthcare is worse, more expensive, and less helpful than were it given to all, and STILL, people vote against universal health care. The only benefit to our system as yet is its ability to enrich a few rent seeking billionaires in the middle of us and our doctors. But because crab in a bucket Billy Joe in rural kansas "don't wanna pay for sum un elses helfcare". Evil, stupid, individualistic self harming fucking animals we are in the US. Barbarians to let our citizens in the richest country in the world go bankrupt because they got sick. Evil.