My oldest son was born with a similar condition. First murmurs at birth, then aortic stenosis diagnosis at 1 month, severity still unknown due to the heart imma

My oldest son was born with a similar condition. First murmurs at birth, then aortic stenosis diagnosis at 1 month, severity still unknown due to the heart immaturity, and the urgent operation at 2 months old to try fix it. A balloon was inserted into his aortic valve by a catheter from his groin and expanded to dilate the valve. It was a terrifying experience, but one that worked great for us. He may have to have a replacement one day, but for now he is healthy and off any medication. We have yearly checkups. I am told replacement surgeries can be done via catheter, sparing the much larger risk in have the chest cracked open. A huge thank you to SNS, the portuguese NHS. All this was done free of charges. It gets a bad rep from some things that don’t work well, but I only have good things to say. A year later I was preparing our 1 year old party and had a call from a friend which had a baby born with a much severe heart condition. He didn’t survive the required operation and I really felt for him. It messed me up. We had been in the same spot but I had been very lucky. Still am.