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My wife is dealing with cancer and associated complications at three distinct hospitals and a national cancer center. The two hospitals on Epic are great - all
by Spooky23 3y ago
My wife is dealing with cancer and associated complications at three distinct hospitals and a national cancer center.
The two hospitals on Epic are great - all of her records are immediately exchanged. The third hospital has a shitty cerner system and has problems sharing between departments. The cancer center has an excellent patient portal but doesn’t integrate.
Ultimately these problems are difficult as the creation of Medicare and Medicaid happened during the early days of computing. So we’re stuck with 75 years of legacy.
- analogj 3y agoSorry to hear about your wife's health issues, I hope she's on the mend. I had a similar experience when dealing with my chronic condition. Had to interact with almost a dozen different health portals, a couple of which were ok, the rest were awful. I'm a software engineer, so I ended up creating my Personal Health Record (PHR) application, which I eventually open-sourced - https://github.com/fastenhealth/fasten-onprem https://github.com/fastenhealth/fasten-onprem It's still a work in progress (and definitely not ready to be used as the primary source-of-truth), but I'm always looking for actionable feedback/contributors. I'd love to hear your thoughts
- hanklazard 3y agoI’m sorry, that’s terrible. Best wishes to her and your whole family.