3 ms·
> I know persons with no usable vision whatsoever who are considerably more capable of navigating than legally blind yet partially sighted persons. It goes to s
by pxc 3y ago
> I know persons with no usable vision whatsoever who are considerably more capable of navigating than legally blind yet partially sighted persons. It goes to show that it really is a skill.
It's more than that, too, especially with progressive eye diseases. The path of least resistance, and the intuitive thing to do, is to rely on whatever vision you have left. At some point, though, your vision degrades so much that qualitatively different approaches— like ones that don't rely on any vision at all— will serve you much better. But even when that's true, switching to something radically different is scary and hard. So many people cling to navigation strategies that don't really work for them anymore much longer than they should.
> Most blind persons have sighted parents since most conditions are autosomal recessive [which can lead to a] lack of support
The inherited retinal disease that runs in my family is autosomal dominant, which means it has appeared all over my family. In fact, on my mom's side, it's appeared in every single generation for at least 5 or 6 generations, maybe more.
And tbh just having that context makes my own disease somewhat less scary for me. I've seen a lot of people in my family go blind, so I know what's happening to me and what's coming. I also know that it's not the end of the world, because blind people in my family have still had friends and hobbies and food and shelter everything else that's really essential in life!
It's definitely still scary, though.
> denial, from their sighted family
I think to some extent, parents just become desperately optimistic when they know that their kids have a struggle ahead. My mom (who is legally blind) has failed repeatedly failed to hear my sister (who shares her condition) about the progression of her own vision loss. In a lot of ways she does 'get it', of course. But there are also moments where she acts surprised by something she's already been told repeatedly, or where she expresses thoughts that are weirdly grasping at remote or fantastic possibilities, like that maybe it will only affect my sister in one eye, or that the progression will stop, or that a cure will be developed in time to stop the progression before my sister goes blind. For blind parents, I think a sense of guilt about passing on what has already been a horrifying trial for them to their own children can unfortunately motivate that same denial or wishful thinking.