2 ms·

I don't have that disease but my retinas are progressively tearing and will probably flake off well before I die. As someone with a seeming inability to interna

I don't have that disease but my retinas are progressively tearing and will probably flake off well before I die. As someone with a seeming inability to internally visualize things (aphantasia) and a terrible sense of direction I'm really dreading trying to navigate (or do anything) when I go blind. I'm firmly in the denial camp and I justify it to myself by looking at all the amazing retinal repair, replacement, and implant studies in restoring vision in mice. The most promising are the implants that release a small molecule that can cause the internerons that remain to become light sensitive and fire. In the experimental mice this somewhat restores their behavior on navigation tasks. Of course I've been reading about these mouse studies for 20 years and so far going blind still means you remain blind.

pxc 3y ago
Some gene therapies which can restore eyesight have already been applied in humans, including for really similar inherited retinal diseases to the one the author of the OP has. Unfortunately such therapies are gene-specific, and there's been no work on one for what I've got. :-\ > As someone with a seeming inability to internally visualize things (aphantasia) and a terrible sense of direction I'm really dreading trying to navigate (or do anything) when I go blind. BIG SAME I have never been much of a visualizer. I can't even draw a straight line. I have ADHD and I very easily get lost as it is. I have a feeling that blind navigation may end up being harder for me than it is for many. Ugh.
deleted 3y ago
[deleted]
Knee_Pain 3y ago
Maybe you should consult with a professional to see if there are exercises you can do to acclimatize yourself better? at least in your own home