2 ms·
> By off-label surgery are you referring to trepanning? https://en.wikipedia.org/wiki/Trepanning https://en.wikipedia.org/wiki/Trepanning Wow! Jeez, I mean th
by consumer451 3y ago
> By off-label surgery are you referring to trepanning? https://en.wikipedia.org/wiki/Trepanning https://en.wikipedia.org/wiki/Trepanning
Wow! Jeez, I mean the thought of doing that myself has certainly crossed my mind in semi-jest, mid attack, but nope.
I found this old study [0] and based on that I had endoscopic sinus surgery. It stopped a 9 month cluster and I did not have another attack for almost a year. The surgeon did it because my sinuses were opaque, but the reason I did it was with the hope of the chance of cluster benefit.
[0] https://pubmed.ncbi.nlm.nih.gov/8924166/ https://pubmed.ncbi.nlm.nih.gov/8924166/
- keepamovin 3y agoPoor you! It must be so painful :( Are there any foods or drinks that bring it on or make it worse or better? Sorry if it's a dumb question, I'm just curious!
- consumer451 3y agoThanks. Alcohol or an empty stomach brings them on, or sometimes they just happen. There is an instant solution to stop the pain, it’s in that study as a footnote I believe. But it’s illegal, extremely habit forming, and very expensive. I have heard that there is a new novocaine nasal spray coming out. That should do the trick if I can ever get my hands on it.
- deleted 3y ago[deleted]