2 ms·

I have tried everything including off-label surgery, that's one I have not. Thanks.

keepamovin 3y ago
By off-label surgery are you referring to trepanning? https://en.wikipedia.org/wiki/Trepanning https://en.wikipedia.org/wiki/Trepanning Also, on a possibly constructive note, have you investigated mycotoxins or heavy-metals (as a possible cause)?
- consumer451 3y ago
  > By off-label surgery are you referring to trepanning? https://en.wikipedia.org/wiki/Trepanning https://en.wikipedia.org/wiki/Trepanning Wow! Jeez, I mean the thought of doing that myself has certainly crossed my mind in semi-jest, mid attack, but nope. I found this old study [0] and based on that I had endoscopic sinus surgery. It stopped a 9 month cluster and I did not have another attack for almost a year. The surgeon did it because my sinuses were opaque, but the reason I did it was with the hope of the chance of cluster benefit. [0] https://pubmed.ncbi.nlm.nih.gov/8924166/ https://pubmed.ncbi.nlm.nih.gov/8924166/
  - keepamovin 3y ago
    Poor you! It must be so painful :( Are there any foods or drinks that bring it on or make it worse or better? Sorry if it's a dumb question, I'm just curious!
    - consumer451 3y ago
      Thanks. Alcohol or an empty stomach brings them on, or sometimes they just happen. There is an instant solution to stop the pain, it’s in that study as a footnote I believe. But it’s illegal, extremely habit forming, and very expensive. I have heard that there is a new novocaine nasal spray coming out. That should do the trick if I can ever get my hands on it.
      - deleted 3y ago
        [deleted]
pluijzer 3y ago
Just as another data point, my ex-girlfriend also had debilitating cluster headaches. Psilocybin, not microdosing just tripping on it, would make it stop for a couple of months. Also, you might be familiar that taking pure oxygen during an attack in known to stop the attack. The problem is that it builds a tolerance were you need more and more which brings problems of its own.
- di456 3y ago
  I know someone who's had success stopping an in-progress visual migraine with low dose psilocybin. They tried it based on some published research. Here's one such study. https://n.neurology.org/content/66/12/1920 https://n.neurology.org/content/66/12/1920

By off-label surgery are you referring to trepanning? https://en.wikipedia.org/wiki/Trepanning https://en.wikipedia.org/wiki/Trepanning Also, on a possibly constructive note, have you investigated mycotoxins or heavy-metals (as a possible cause)?

consumer451 3y ago
> By off-label surgery are you referring to trepanning? https://en.wikipedia.org/wiki/Trepanning https://en.wikipedia.org/wiki/Trepanning Wow! Jeez, I mean the thought of doing that myself has certainly crossed my mind in semi-jest, mid attack, but nope. I found this old study [0] and based on that I had endoscopic sinus surgery. It stopped a 9 month cluster and I did not have another attack for almost a year. The surgeon did it because my sinuses were opaque, but the reason I did it was with the hope of the chance of cluster benefit. [0] https://pubmed.ncbi.nlm.nih.gov/8924166/ https://pubmed.ncbi.nlm.nih.gov/8924166/
- keepamovin 3y ago
  Poor you! It must be so painful :( Are there any foods or drinks that bring it on or make it worse or better? Sorry if it's a dumb question, I'm just curious!
  - consumer451 3y ago
    Thanks. Alcohol or an empty stomach brings them on, or sometimes they just happen. There is an instant solution to stop the pain, it’s in that study as a footnote I believe. But it’s illegal, extremely habit forming, and very expensive. I have heard that there is a new novocaine nasal spray coming out. That should do the trick if I can ever get my hands on it.
    - deleted 3y ago
      [deleted]

pluijzer 3y ago

Just as another data point, my ex-girlfriend also had debilitating cluster headaches. Psilocybin, not microdosing just tripping on it, would make it stop for a couple of months. Also, you might be familiar that taking pure oxygen during an attack in known to stop the attack. The problem is that it builds a tolerance were you need more and more which brings problems of its own.

di456 3y ago
I know someone who's had success stopping an in-progress visual migraine with low dose psilocybin. They tried it based on some published research. Here's one such study. https://n.neurology.org/content/66/12/1920 https://n.neurology.org/content/66/12/1920