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We need a nuanced approach. Blanket bans, while sounding good, can slow down pace of innovation in an area that desperately needs more of it - esp as the world

We need a nuanced approach. Blanket bans, while sounding good, can slow down pace of innovation in an area that desperately needs more of it - esp as the world is aging. This needs to be a combination of informed consent, clear access auditing and usage, and laws to heavily penalize misuse of this data.

deleted 3y ago
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jillesvangurp 3y ago
Everybody wants privacy. But they also want treatment for whatever ails them. These things don't have to be mutually exclusive. Lack of information is a big challenge for doctors. When I say challenge, I mean people are dying needlessly because of their doctors don't have access to critical information and this leads to bad decision making. Here in Germany doctors are completely in the dark. Even basic information like who I am or where people live isn't being shared. Because privacy. Every doctor you talk to first needs to take down all your basic details. Address, date of birth, etc. Every medical appointment is ground hog day. They know nothing of you, your personal details, or your medical history. And German GPs don't do a lot themselves. You get referred for even the most basic things but without them sharing information. So, all the obvious things happen on a daily basis. People receiving the wrong medications. Doctors not acting because they are unaware of the history of the person in front of them. Or wasting time on diagnosing things that have already been diagnosed. Or mis-diagnosing those things. That's the consequence of bad data. The standard German sentiment against any digital is "I don't like this". But the consequences are that they have to suffer bad health care, a stupendously inefficient system that they pay for through really expensive insurance every month, and preventable deaths because essential data isn't being exchanged to those who need it. And their privacy sucks anyway, because IT security is about what you expect from a sector running on ancient hardware and software. IT incompetence/ignorance is the norm. Quite a contrast with other countries I've lived in.
- JohnFen 3y ago
  > Everybody wants privacy. But they also want treatment for whatever ails them. These things don't have to be mutually exclusive If I didn't have a modicum of assurance that what happens between me and my doctor stays between me and my doctor, I would absolutely avoid going to see a doctor to the greatest extent possible.

deleted 3y ago

[deleted]

jillesvangurp 3y ago

Everybody wants privacy. But they also want treatment for whatever ails them. These things don't have to be mutually exclusive. Lack of information is a big challenge for doctors. When I say challenge, I mean people are dying needlessly because of their doctors don't have access to critical information and this leads to bad decision making. Here in Germany doctors are completely in the dark. Even basic information like who I am or where people live isn't being shared. Because privacy. Every doctor you talk to first needs to take down all your basic details. Address, date of birth, etc. Every medical appointment is ground hog day. They know nothing of you, your personal details, or your medical history. And German GPs don't do a lot themselves. You get referred for even the most basic things but without them sharing information. So, all the obvious things happen on a daily basis. People receiving the wrong medications. Doctors not acting because they are unaware of the history of the person in front of them. Or wasting time on diagnosing things that have already been diagnosed. Or mis-diagnosing those things. That's the consequence of bad data. The standard German sentiment against any digital is "I don't like this". But the consequences are that they have to suffer bad health care, a stupendously inefficient system that they pay for through really expensive insurance every month, and preventable deaths because essential data isn't being exchanged to those who need it. And their privacy sucks anyway, because IT security is about what you expect from a sector running on ancient hardware and software. IT incompetence/ignorance is the norm. Quite a contrast with other countries I've lived in.

JohnFen 3y ago
> Everybody wants privacy. But they also want treatment for whatever ails them. These things don't have to be mutually exclusive If I didn't have a modicum of assurance that what happens between me and my doctor stays between me and my doctor, I would absolutely avoid going to see a doctor to the greatest extent possible.