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This. "Your data is open and available in perpetuity for whatever use" is in deep conflict with how we think about human subjects data, often for very good rea
by Fomite 3y ago
This.
"Your data is open and available in perpetuity for whatever use" is in deep conflict with how we think about human subjects data, often for very good reason.
- jrumbut 3y agoOne thing that was really jarring for me moving from the startup/consulting/advertising space to the research space was that human subjects data really gets deleted. It's not just the deleted_at column being set, there's no backup, it's really gone. Every copy, forever. I appreciate the ethics of it, and part of my reason for working in this area is because of these ethics, but even 5 years in there is so much reluctance to press that delete button.