3 ms·

Healthcare is fascinating. The quote that nothing will be implemented that possibly harms patients is false, because harm is complicated. Sharing patient data

Healthcare is fascinating. The quote that nothing will be implemented that possibly harms patients is false, because harm is complicated. Sharing patient data harms privacy, but in the long run more data sharing is probably the best route for reducing physical harm. The body is just too complicated for individuals to fully grok.

neon_electro 3y ago
Do you believe in a middle ground of informed consent such that data can be shared while mitigating the privacy harms? It allows each patient to make their own decisions, and just like volunteering to be an organ donor, there can be societal benefit without forcing harm on people who do not want to participate.
- thegrimmest 3y ago
  I don't. I think sharing data should be a mandatory part of receiving services. In order to benefit from the system you must commit to continue to improve it.
- levihaku 3y ago
  I believe that if I cared more about privacy than my life, I wouldn't go to a public institution full of people I objectively cannot trust because I don't personally know them and then put my life in their hands. Privacy schizos need to stop making up nonsense. All of your diagnosed illnesses are permanently stored in a database that will never ever be deleted until decades after your death. This data is already shared between all hospitals. The moment you step through the hospital door you aren't at home and your privacy fantasies end. Literally any malicious worker could leak your data and then what? Why does this even matter. If I see you in a street, I can tell you're sickly just from the direction you're walking in.
skybrian 3y ago
> Sharing patient data harms privacy Yes, that's a very abstract statement that seems plausible and is easy to make, but how do we know there's significant harm? What are some real-world examples? Can we quantify how much harm is done to patients from sharing too much, versus sharing too little?

neon_electro 3y ago

Do you believe in a middle ground of informed consent such that data can be shared while mitigating the privacy harms? It allows each patient to make their own decisions, and just like volunteering to be an organ donor, there can be societal benefit without forcing harm on people who do not want to participate.

thegrimmest 3y ago
I don't. I think sharing data should be a mandatory part of receiving services. In order to benefit from the system you must commit to continue to improve it.
levihaku 3y ago
I believe that if I cared more about privacy than my life, I wouldn't go to a public institution full of people I objectively cannot trust because I don't personally know them and then put my life in their hands. Privacy schizos need to stop making up nonsense. All of your diagnosed illnesses are permanently stored in a database that will never ever be deleted until decades after your death. This data is already shared between all hospitals. The moment you step through the hospital door you aren't at home and your privacy fantasies end. Literally any malicious worker could leak your data and then what? Why does this even matter. If I see you in a street, I can tell you're sickly just from the direction you're walking in.

skybrian 3y ago

> Sharing patient data harms privacy Yes, that's a very abstract statement that seems plausible and is easy to make, but how do we know there's significant harm? What are some real-world examples? Can we quantify how much harm is done to patients from sharing too much, versus sharing too little?