3 ms·
Thanks for the insight, it's much appreciated :) I guess I didn't get across what I was trying to say about the "diagnosis" - be it restless-leg syndrome (whic
by spacedcowboy 3y ago
Thanks for the insight, it's much appreciated :)
I guess I didn't get across what I was trying to say about the "diagnosis" - be it restless-leg syndrome (which I totally agree is a real thing, not trying to downplay it) or one of the many other things they've come up with. The point I was failing :) to make was that they haven't come up with a diagnosis at all really - they're just throwing out there anything that might correspond to one of her symptoms, without addressing something that might be a root cause. IMNSHO :)
FWIW, she didn't have any significant diarrhoea - she had a mild instance of it. The thing is that we don't know if she had chronic or acute hyponatremia - she hadn't been for blood tests that would have picked it up in, well, forever, previously to going into hospital. It was news to us that she had it at all - we went in for an unrelated reason (which they told us was benign).
From my limited understanding having read up on it, it's possible she did have a long-term hyponatremia issue going on, and her body was just coping with it until it was discovered. They have done lots of blood-tests (metabolic panels, liver-function, urinalysis, various disease-specific tests, etc,) Her blood-work and imaging all come back fine.
Anyway, she has more CT and MRI scans over the next week or two, ordered by various specialists. Here's hoping they find something to explain it. I still come back to "9 weeks ago, she was without any of these symptoms. Rapidly fixing the hyponatremia has ruined her life". I don't believe too much in coincidence, so for her to suddenly come down with something else at the same time as a medical treatment that made her go completely non-responsive where she couldn't even say her name is stretching credulity too far for me, unless some extraordinary evidence is uncovered.