3 ms·

Underlying causes. Autoimmune Sjogrens, clotting disorder that was in over drive (factor 5) high cranial pressure(IIH) Nerve damage(probably from Sjogrens) lo

Underlying causes. Autoimmune Sjogrens, clotting disorder that was in over drive (factor 5) high cranial pressure(IIH) Nerve damage(probably from Sjogrens) lot Vit D Did an elimination diet. That calmed the body down. AIP diet to maintain. Started high doses of Vit D, E, Omega 3. Started watching bob and Brad and spent a couple hours a day on stretching and massages. Discovered and treated TMJ. Removing smells and lights. That got migraines under control. (Slow reduction over the months) LDN got nerve pain under control. Diamox to get head pressure under control. The big one was I kept having stroke symptoms, but MRIs were clean. Started blood thinners and symptoms went away.

throwaway02sfv 3y ago
My wife seems to have broadly the same symptoms you are mentioning. Sharp migraines, anxiety attacks (as per doctors), rapid heartbeats, disturbed sleep, bodyache, random mood swings etc. Her MRI is clean too. Doctors just started her with blood thinners which might be alleviating some pain but no, she is not feeling good at all. Had done multiple tests, visited bunch of doctors but still yet to figure what's exactly wrong with her body?
- treeman79 3y ago
  Rhumtologist to check for autoimmune. Avg time period for diagnosis for mine (Sjogrens) is 7 years. Get test results and look them up. Doctors kept ignoring positive results, saying they are false flags. Like high ANA. When I kept pushing for more tests they kept saying results didn’t matter. Or they use tests that Re 1/3 false negative. With diet I didn’t need dr approval and lots of people say it works better than meds. I found that to be true. It is a Huge mental block on giving up comfort food when hurting. Clotting (factor 5) food didn’t matter. But I found artificial sugar was a trigger. Neurologist for nerve pain or head. Neuro-ophtomoligist are often good at whole body issues. IIH high cranial pressure may or may not have clean MRI. Lumbar puncture is needed.

throwaway02sfv 3y ago

My wife seems to have broadly the same symptoms you are mentioning. Sharp migraines, anxiety attacks (as per doctors), rapid heartbeats, disturbed sleep, bodyache, random mood swings etc. Her MRI is clean too. Doctors just started her with blood thinners which might be alleviating some pain but no, she is not feeling good at all. Had done multiple tests, visited bunch of doctors but still yet to figure what's exactly wrong with her body?

treeman79 3y ago
Rhumtologist to check for autoimmune. Avg time period for diagnosis for mine (Sjogrens) is 7 years. Get test results and look them up. Doctors kept ignoring positive results, saying they are false flags. Like high ANA. When I kept pushing for more tests they kept saying results didn’t matter. Or they use tests that Re 1/3 false negative. With diet I didn’t need dr approval and lots of people say it works better than meds. I found that to be true. It is a Huge mental block on giving up comfort food when hurting. Clotting (factor 5) food didn’t matter. But I found artificial sugar was a trigger. Neurologist for nerve pain or head. Neuro-ophtomoligist are often good at whole body issues. IIH high cranial pressure may or may not have clean MRI. Lumbar puncture is needed.