People can choose to give a blood sample for the study, but they are not being told if they carry the mutation. I’m unclear if they even tell people they have f

People can choose to give a blood sample for the study, but they are not being told if they carry the mutation. I’m unclear if they even tell people they have found through the genealogical tree (that did not provide a blood sample) that they are part of it. The Spanish speaking podcast Radio Ambulante covered the story few years ago. Here’s an English transcription of it https://radioambulante.org/en/transcripcion/the-paisa-mutation-translation https://radioambulante.org/en/transcripcion/the-paisa-mutati...