I'm not on Facebook, but from talking with friends who have related conditions, that's where everyone is online. You have to be aware that some of these groups

I'm not on Facebook, but from talking with friends who have related conditions, that's where everyone is online. You have to be aware that some of these groups promote quackery and others are reasonable. (There are always good intentioned people who don't know whether something is or could be quackery because everyone can't know everything. But the responses will usually tell you whether the group is trustworthy or not.)