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> the few trials it is planning have already drawn a firestorm of criticism, especially one intervention that experts and advocates say may actually make some p
by jonas21 4y ago
> the few trials it is planning have already drawn a firestorm of criticism, especially one intervention that experts and advocates say may actually make some patients’ long Covid symptoms worse.
> Instead, the NIH spent the majority of its money on broader, observational research that won’t directly bring relief to patients.
Doesn't one kind of follow from the other? If the interventional studies all get hit with a "firestorm of criticism", then all you're going to be left with are the observational studies.
- giantg2 4y agoYou'd need observational studies to make intelligent proposals on interventions. There's probably not a lot of appetite to be part of an intervention study if the observational results have not been published.
- incone123 4y agoThere probably is an appetite if someone had a promising treatment. I searched to see if the UK has any interventional studies but all I found was one that seemed to be about helping people to tailor their self-management. https://www.birmingham.ac.uk/research/quest/21st-century-healthcare/long-covid.aspx https://www.birmingham.ac.uk/research/quest/21st-century-hea... "Using their findings, the researchers will co-produce with patients a targeted intervention for Long COVID, tailored to individual patient need. Delivered remotely in the community, via the Atom5™ app, it will provide critical support and information to empower patients in self-managing Long COVID."
- s1artibartfast 4y agoA promising treatment for what? IF you dont know what long covid looks like and how it acts, you can never claim to treat it.
- incone123 4y agoDid you miss a few steps in this thread?
- s1artibartfast 4y agoI dont think so? You need observation studies to characterize a condition before you can claim to have any impact treating it. The artlce you shared makes great effort to spell this out.