12 ms·

An Update on Dianna's Health (Physics Girl) [video]

187 points by aflag 4y ago

nirvgorilla 4y ago
[flagged]
nirvgorilla 4y ago
[dead]
GenerocUsername 4y ago
[flagged]
- therein 4y ago
  [flagged]
  - dang 4y ago
    The problem is that you're breaking the site guidelines left and right so your comments are rightly being flagged even if some users are flagging them for the wrong reasons. If you want to present a minority/contrarian view you need to go about it in a completely different way. Venting and fulminating will only alienate others, get you banned for breaking the site rules, and ultimately discredit your own point of view, which isn't in your interest. https://hn.algolia.com/?dateRange=all&page=0&prefix=true&query=by%3Adang%20minority%20contrarian%20view&sort=byDate&type=comment https://hn.algolia.com/?dateRange=all&page=0&prefix=true&que... https://hn.algolia.com/?dateRange=all&page=0&prefix=true&sort=byDate&type=comment&query=truth%20discredit%20by:dang https://hn.algolia.com/?dateRange=all&page=0&prefix=true&sor... https://news.ycombinator.com/newsguidelines.html https://news.ycombinator.com/newsguidelines.html
maxbond 4y ago
Tl;Dw - Physics Girl, a popular science education YouTuber, is on an indefinite hiatus due to complications from long COVID resulting in chronic fatigue. The video has a lot more detail about the severity of her condition and her husband's efforts to care for her. Her friends are asking people to consider subscribing to her Patreon.
- poorbutdebtfree 4y ago
  [flagged]
  - racl101 4y ago
    AMI?
    - gpvos 4y ago
      Most likely, a heart attack: https://en.m.wikipedia.org/wiki/Acute_myocardial_infarction https://en.m.wikipedia.org/wiki/Acute_myocardial_infarction
      - racl101 4y ago
        Thanks.
    - dctoedt 4y ago
      > AMI? Heart attack? https://www.jcdr.net/article_fulltext.asp?id=223 https://www.jcdr.net/article_fulltext.asp?id=223
  - Kenji 4y ago
    [dead]
  - all2 4y ago
    [flagged]
    - SteveNuts 4y ago
      This article sounds like it was written by a 9 year old
      - 2muchcoffeeman 4y ago
        Let’s please not result to attacking the tone of the article. The data is probably not wrong. It’s probably taken out of context though. But you can get the same issues from contracting COVID. https://www.cdc.gov/mmwr/volumes/70/wr/mm7035e5.htm https://www.cdc.gov/mmwr/volumes/70/wr/mm7035e5.htm Which looks like an order of magnitude greater from getting the real thing. I find people are really not good at considering other scenarios and ball parking risk. Or maybe they just want to be contrarian.
jwagenet 4y ago
Mason Earle is a professional rock climber who also deals with this condition (since before Covid) and was featured on Death, Sex, and Money: https://www.wnycstudios.org/podcasts/deathsexmoney/episodes/mason-earle-death-sex-money https://www.wnycstudios.org/podcasts/deathsexmoney/episodes/...
- ActorNightly 4y ago
  How intensive rock climbing in terms of cardio load? It seems that cardio health was the biggest contributor to not getting serious Covid, seems surprising that an athlete would get this.
  - chas 4y ago
    He developed ME/CFS in 2018 without a known cause (to the best of my knowledge).
  - qbasic_forever 4y ago
    Very intensive with cardio. A big wall climb is probably 2-3k vertical feet or more of climbing. That's like climbing hundreds and hundreds of floors in a building (but even steeper and harder). Speed climbers can ascend something that high in a matter of hours. It's a big cardio and endurance demand.
lisper 4y ago
Wow. Worth noting that Simone [1] had some serious health challenges of her own not too long ago. https://www.youtube.com/watch?v=7x5XRQ07sjU https://www.youtube.com/watch?v=7x5XRQ07sjU Something about being a female STEM YouTuber... :-( --- [1] https://en.wikipedia.org/wiki/Simone_Giertz https://en.wikipedia.org/wiki/Simone_Giertz
- Alan_Dillman 4y ago
  [flagged]
  - lisper 4y ago
    That's undoubtedly why you are still healthy.
- wyldfire 4y ago
  Interesting! From the Wikipedia article above: > Giertz is a descendant of Lars Magnus Ericsson, founder of Ericsson.
- AdamJacobMuller 4y ago
  Hopefully firmly in the had serious health challenges category. If you don’t know her videos, I think Simone produces some of the greatest content on youtube. Deeply authentic, highly skilled, with a really funny subtext of knowing absurdist humor to them. Really great content.
  - lisper 4y ago
    Yeah, definitely this. My favorite: https://www.youtube.com/watch?v=jKv_N0IDS2A https://www.youtube.com/watch?v=jKv_N0IDS2A Just the first 50 seconds are pure gold.
    - AdamJacobMuller 4y ago
      Truckla is great, truckla is love but truckla is also useful. Bubble wrap player machine is deeply pointless and amazing https://youtu.be/nLGs7auWdgE https://youtu.be/nLGs7auWdgE https://youtu.be/M1B3gATS0GE https://youtu.be/M1B3gATS0GE the proud parent machine was profoundly disturbing.
DantesKite 4y ago
That's unfortunate. I had some complications after COVID as well (with blood tests showing decreased T cell counts and a CD4+/CD8+ T ratio that's well below the healthy range. I think one thing that took me by surprise is just how COVID seems to damage the immune system in some people, causing T cell exhaustion (chronic exposure to an antigen causing molecular changes in T cell expression so there's more inhibitory receptors and they're not as functional). If you've noticed some strange symptoms a few months after having COVID, like thrush, unexpected autoimmune issues, or just feel like infections hit you a lot harder nowadays, I highly recommend doing a lymphocyte subpanel blood test. You can order them online. Might help clarify some things. I'm currently using a protein called Thymic Protein-A to increase my CD4+ T cell counts and it's been somewhat successful in making me feel better (doubled my lymphocytes which were on the low end for a few years in about a week), though time will tell whether or not it's ultimately a successful treatment (especially since CD4+ T cell counts increase at a rate of about 10 cells per microliter in healthy human adults). Just my two cents. Obviously it's different for everyone. But I think every bit of information counts while we're still trying to figure this thing out.
cbeach 4y ago
[flagged]
- narrator 4y ago
  [flagged]
- 53739920 4y ago
  This always pops up when someone says they have long covid. My favorite is when someone got long covid after contracting covid in April 2020, and people came out of the woodwork to blame the vaccine--almost a year before the vaccine was rolled out to the general public.
  - cbeach 4y ago
    Ask yourself -why- this always pops up. We're learning a lot more about the side-effects of mRNA vaccines since a court denied Pfizer the 75-year moratorium it requested on releasing its test results to the public, and since studies have been released into the safety of the vaccines https://pubmed.ncbi.nlm.nih.gov/36055877/ https://pubmed.ncbi.nlm.nih.gov/36055877/
- AlbertoGP 4y ago
  She did get a COVID-19 vaccine, do not know which (https://twitter.com/thephysicsgirl/status/1377044196977037312 https://twitter.com/thephysicsgirl/status/137704419697703731...), but anyway here is her response in December about the suggestion that her condition was caused by it: https://twitter.com/thephysicsgirl/status/1601438687476142081 https://twitter.com/thephysicsgirl/status/160143868747614208...
  - t0bia_s 4y ago
    She mention one study, but there are plenty other studies that rising questions about vaccine safety. ------- Autopsy Histopathologic Cardiac Findings in 2 Adolescents Following the Second COVID-19 Vaccine Dose https://meridian.allenpress.com/aplm/article/146/8/925/47778 https://meridian.allenpress.com/aplm/article/146/8/925/47778... Risks of myocarditis, pericarditis, and cardiac arrhythmias associated with COVID-19 vaccination or SARS-CoV-2 infectionhttps://www.nature.com/articles/s41591-021-01630-0#Aff1 https://www.nature.com/articles/s41591-021-01630-0#Aff1 Vaccine-Associated Myo/Pericarditis in Adolescents: A Stratified Risk-Benefit Analysis https://onlinelibrary.wiley.com/doi/10.1111/eci.13759 https://onlinelibrary.wiley.com/doi/10.1111/eci.13759 Persistent Cardiac Magnetic Resonance Imaging Finfings in a Cohort of Adolescents with Post-Coronavirus Disease 2019 mRNA Vaccine Myopericarditis https://www.jpeds.com/article/S0022-3476(22)00282-7/fulltext https://www.jpeds.com/article/S0022-3476(22)00282-7/fulltext Epidemiology of Acute Myocarditis/Pericarditis in Hong Kong Adolescents Following Comirnaty Vaccination https://pubmed.ncbi.nlm.nih.gov/34849657/ https://pubmed.ncbi.nlm.nih.gov/34849657/ Age and sex-specific risks of myokarditis and pericarditis following Covid-19 messenger RNA vaccines https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9233673/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9233673/ Goddard K.et al: Risk of myokarditis and pericarditis following BT162b2 and mRNA-1273 COVID-19 vaccination, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9273527/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9273527/ Bardosh K.et al: COVID-19 Vaccine Boosters for Young Adults: A Risk-Benefit Assessment and Five Ethical Arguments against Mandates at Universities https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4206070 https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4206070 Oster M.E. et al: Myocarditis Cases Reported After mRNA-Based COVID-19 Vaccination in the US From December 2020 to August 2021 https://jamanetwork.com/journals/jama/fullarticle/2788346 https://jamanetwork.com/journals/jama/fullarticle/2788346 Lai F.T. et al: Carditis After COVID-19 Vaccination With a Messenger RNA Vaccine and an Inactivated Virus Vaccine https://www.acpjournals.org/doi/full/10.7326/M21-3700?rfr_da https://www.acpjournals.org/doi/full/10.7326/M21-3700?rfr_da... Massari M. et al: Postmarketing active surveillance of myokarditis and pericarditis following vaccination with COVID-19 mRNA vaccines in persons aged 12 to 39 years in Italy: A multi-database, self-controlled case series study https://pubmed.ncbi.nlm.nih.gov/34849657/ https://pubmed.ncbi.nlm.nih.gov/34849657/ SARS-CoV-2 Vaccination and Myocarditis in a Nordic Cohort Study of 23 Million Residents https://jamanetwork.com/journals/jamacardiology/fullarticle/ https://jamanetwork.com/journals/jamacardiology/fullarticle/... A Case of Vaccine-Induced Thrombocytopenic Thrombosis Manifesting as Cerebral Venous Thrombosis and Intracerebral Bleed https://ncbi.nlm.nih.gov/pmc/articles/PMC9894637/ https://ncbi.nlm.nih.gov/pmc/articles/PMC9894637/ Protection and waning of natural and hybrid COVID-19 immunity https://www.medrxiv.org/content/10.1101/2021.12.04.21267114v https://www.medrxiv.org/content/10.1101/2021.12.04.21267114v... Acute Inflammatory Diseases of the Central Nervous System After SARS-CoV-2 Vaccination https://nn.neurology.org/content/10/1/e200063.abstract https://nn.neurology.org/content/10/1/e200063.abstract A Comparison of Cases of Autoimmune Hepatitis After Vaccination Against COVID-19 https://journals.lww.com/acgcr/Fulltext/2023/01000/It_Can_t_ https://journals.lww.com/acgcr/Fulltext/2023/01000/It_Can_t_... Cerebral venous sinus thrombosis after COVID-19 vaccination: a case report and literature review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9853928/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9853928/ COVID-19 vaccine surveillance report Week 42 https://assets.publishing.service.gov.uk/government/uploads/ https://assets.publishing.service.gov.uk/government/uploads/...
dgeiser13 4y ago
[flagged]
- deleted 4y ago
  [deleted]
BenFranklin100 4y ago
[flagged]
- deleted 4y ago
  [deleted]
- deleted 4y ago
  [deleted]
- gus_massa 4y ago
  Another possibility is that the ME/CFS diagnosis is correct, but it's unrelated to the covid-19 infection. I think the initial symptoms of ME/CFS are sometimes mild and ignored, and it's difficult to have a definite starting day and be sure it didn't star before the covid infection, or started after but is unrelated.
- Semaphor 4y ago
  A streamer I watch has autoimmune diseases and CFS. Since she got Covid last year, they both got worse. Not even close to what’s the case here, but still enough to force her to take extended breaks more often than usual. And for more anecdotes, "extremely atypical"? Extreme fatigue is pretty much the most common symptom of long COVID I heard of, why would that be atypical?
  - BenFranklin100 4y ago
    You miss my point. You are assuming this has something to with COVID. Given the high prevalence of COVID, it might not at all. Do the Bayesian statistics.
    - Semaphor 4y ago
      You ignored half my message.
- lamontcg 4y ago
  > Chronic and severe fatigue existed long before SARS-CoV-2 appeared. Yeah, and it was thought to be often triggered by viral infections.
superb-owl 4y ago
ME/CFS is one of those diseases that truly scares me. It’s wildly debilitating, and we have no idea what causes it. The history of controversy surrounding it is worth a read: https://en.m.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome https://en.m.wikipedia.org/wiki/Controversies_related_to_chr...
deleted 4y ago
[deleted]
taylorfinley 4y ago
I went to high school with Dianna and was good friends with her older sis. They were both super genuine and truly wonderful people back then. I saw this on social media a few days ago from mutual friends, it's really sad to hear how much she's been impacted. Really heartening to see this community cares too. I've seen a lot of go-fund-me grift over the years and am usually an extremely skeptical person, but if Dianna's family is asking for support fwiw I believe that means they really do need it and likely don't have any other options.
- hummus_bae 4y ago
  [dead]
- keizo 4y ago
  I know taylor from high school and trust him. And know many that know Dianna. I would trust whatever support they get will go to good use. Also, taylor we going to 20 yr this summer? :| :) good to see you on this corner of the internet.
  - taylorfinley 4y ago
    Woah, keizo! Great to hear from you. Man that 20 years snuck up on me quick, I just might have to try to make it home.
    - keizo 4y ago
      :) not sure i'll ever understand time.
quenched 4y ago
This is very sad to see and I wish Dianna and her family the very best for her recovery. I'm into year three of long COVID (ME/CFS) and was fortunate to not reach this level of severity, and to have improved slowly with time to mostly housebound rather than bedbound, but it is a remarkable disease. The name does it little justice, and fatigue - while certainly pathological and disabling - is not the primary feature. The disease appears unique in terms of an abnormal response to exertion. This has been characterised via two-day cardiopulmonary exercise testing. Healthy controls and even those with other severely limiting diseases will show improvement on day 2, but ME/CFS uniquely shows a reduction on the second day. Other key features are orthostatic intolerance with demonstration of reduction in cerebral blood flow in the majority on sitting/standing. Neurological symptoms including extreme sensitivity to light and sound explain her blindfold and ear protectors. Many have fluctuating cognitive slowing ("brain fog"). New insights into the metabolic derangements are being gained. Recently[1] evaluation of urine metabolomics demonstrated that healthy sedentary controls excrete many metabolites at 4 and 24 hours following an exercise challenge, while ME/CFS patients do not. Apart from the devastating effects on patients and the economic impacts of losing so many from the workforce[2], I believe that understanding the immune and metabolic derangements underlying this condition will lead to major insights across many health domains. [1] https://www.mdpi.com/1422-0067/24/4/3685 https://www.mdpi.com/1422-0067/24/4/3685 [2] https://www.nature.com/articles/s41579-022-00846-2 https://www.nature.com/articles/s41579-022-00846-2
- zamnos 4y ago
  That was a heartbreaking video to watch. My heart goes out to this woman and her family. In my experience, having caught covid in March 2020, fatigue is the problem. It's just that calling it "fatigue" doesn't spell out how dehabilitating that aspect is. It's maybe 100 ft/30 meters from my bed to the kitchen. At the worst of my long covid, I was getting winded walking from my bed to the kitchen. So then I'm in the kitchen, I'm supposed to make food for myself. But it's not like I could stand up for any amount of time. Chopping vegetables is right out. Making anything more advanced than microwave food was too difficult at the worst of it. And even then, figuring out the directions on them was sometimes too complicated. And I figured out C pointers and passed calculus. You don't know how your body can fail you until you can't do something that should be trivial to do but you simply can't. It's easier to see for physical maladies - you'd not ask someone with two broken legs why they can't stand up. Fatigue in a Long Covid context means it's too tiring even to just watch Netflix. That the exertion to sit there and focus your mind even slightly is beyond you. People are able to put Netflix on in the background and still fall grasp most of the story. With long covid, following a plot, just listening, with all the power you have remaining, is simply asking too much of your body. The most damning part of it is the aftermath from any significant physical exertion. Like going to the doctor in person. Remember, it's a marathon of exhaustion going from bed to the kitchen, so leaving the bed, getting dressed, going to the doctor, sitting the waiting room, filling out forms - remember your brain only barely works so writing out the answer to eben the first question, name, is a challenge. Seeing the Dr, hopefully they're of any use. Then you have to dance for them and take their tests. Finally you get home and crawl back in to bed, exhausted, so you take a nap. You wake up after that nap get some water and go back to sleep becy you're still tired. When you wake up it's literally been 4 days. You pushed yourself because going to see the doctor was important, but the overexertion of going to see the doctor wiped you out and not only were you bedridden for four days, but you were unconscious. That forces you to recalibrate your whole life. You can't just push through things and stay up a bit late or go out to see friends without stopping to think (which, again, is in and of itself a challenge in ways it never was before) is there anything I need to be conscious for in the next four days? So at least for me, "fatigue" was the primary complaint (followed by "brain fog"), it's just that without spelling out what fatigue actually means in the context of long covid, it's not apparent what that actually means.
stndef 4y ago
Very sad to see. I've seen a few posts recently from her accounts suggesting that things really haven't been good at all. I really do hope things get better, and quickly at that. Post viral wise, things can get really nasty, even if being infected with the virus doesn't appear to be that bad. I had shingles five or six years ago and have had chronic fatigue since. I'd say I was pretty fit being able to cycle 30 miles a day going back and forth between work, and now I'd consider myself lucky if I could do 1/8 that. I have a stick on me at all times in case I collapse. Congitively I'm pretty borked at points as well. I am better than a few years ago, but it's clear that I'll never be back to where I was -- I experience good days and bad weeks. Avoid COVID if you can, get your boosters and if you do get COVID or any other illness, really, please try to rest well and avoid returning back to normal too quickly if life allows for that (I know it isn't that easy). I went back to work too quickly and belive that had a significant impact on my recovery.
nirvgorilla 4y ago
[flagged]
nirvgorilla 4y ago
[flagged]
nirvgorilla 4y ago
[flagged]
zingababba 4y ago
During my first round of COVID I suddenly developed Terry's nails and extreme exercise intolerance. The tips of my fingernails were bands of dark red and the rest of my nail bed was completely white. I showed it to something like 5 different doctors and was shrugged off every time. I also started to develop skipping heart beats that got so bad it was happening hundreds of times a day. Prior to COVID I was highly active 6 days a week and had been for nearly a decade. After COVID I was finding it hard to exercise once or twice a week. This went on for years, all the while I was trying to figure out WTF was going on with me. Eventually I started supplementing copper and my heart issues went away completely within a week. I then started to supplement Iron and my nail beds started to fill back in. After a month of supplementing I got my Iron/Copper levels checked out of pocket and my ferritin was below range and my copper was just in range. I don't know if I was susceptible to this and COVID kicked me into this territory or what but man was it a shitty ride.
anshumankmr 4y ago
Is there a GoFundMe or something?
DoItToMe81 4y ago
Okay, this does not add up. She's sick and her friend's reaction is to whip out a camera and start filming and begging? Beyond that, "chronic fatigue" is mixed far more with mental illness than it is physical illness. And more often than not, long Covid fatigue does not get notably worse over time, it stays consistent or improves. I've seen long Covid first hand. I'm not sure I buy this, especially with the e-begging attached.

187 points by aflag 4y ago

nirvgorilla 4y ago

[flagged]

nirvgorilla 4y ago

[dead]

GenerocUsername 4y ago

[flagged]

therein 4y ago
[flagged]
- dang 4y ago
  The problem is that you're breaking the site guidelines left and right so your comments are rightly being flagged even if some users are flagging them for the wrong reasons. If you want to present a minority/contrarian view you need to go about it in a completely different way. Venting and fulminating will only alienate others, get you banned for breaking the site rules, and ultimately discredit your own point of view, which isn't in your interest. https://hn.algolia.com/?dateRange=all&page=0&prefix=true&query=by%3Adang%20minority%20contrarian%20view&sort=byDate&type=comment https://hn.algolia.com/?dateRange=all&page=0&prefix=true&que... https://hn.algolia.com/?dateRange=all&page=0&prefix=true&sort=byDate&type=comment&query=truth%20discredit%20by:dang https://hn.algolia.com/?dateRange=all&page=0&prefix=true&sor... https://news.ycombinator.com/newsguidelines.html https://news.ycombinator.com/newsguidelines.html

maxbond 4y ago

Tl;Dw - Physics Girl, a popular science education YouTuber, is on an indefinite hiatus due to complications from long COVID resulting in chronic fatigue. The video has a lot more detail about the severity of her condition and her husband's efforts to care for her. Her friends are asking people to consider subscribing to her Patreon.

poorbutdebtfree 4y ago
[flagged]
- racl101 4y ago
  AMI?
  - gpvos 4y ago
    Most likely, a heart attack: https://en.m.wikipedia.org/wiki/Acute_myocardial_infarction https://en.m.wikipedia.org/wiki/Acute_myocardial_infarction
    - racl101 4y ago
      Thanks.
  - dctoedt 4y ago
    > AMI? Heart attack? https://www.jcdr.net/article_fulltext.asp?id=223 https://www.jcdr.net/article_fulltext.asp?id=223
- Kenji 4y ago
  [dead]
- all2 4y ago
  [flagged]
  - SteveNuts 4y ago
    This article sounds like it was written by a 9 year old
    - 2muchcoffeeman 4y ago
      Let’s please not result to attacking the tone of the article. The data is probably not wrong. It’s probably taken out of context though. But you can get the same issues from contracting COVID. https://www.cdc.gov/mmwr/volumes/70/wr/mm7035e5.htm https://www.cdc.gov/mmwr/volumes/70/wr/mm7035e5.htm Which looks like an order of magnitude greater from getting the real thing. I find people are really not good at considering other scenarios and ball parking risk. Or maybe they just want to be contrarian.

jwagenet 4y ago

Mason Earle is a professional rock climber who also deals with this condition (since before Covid) and was featured on Death, Sex, and Money: https://www.wnycstudios.org/podcasts/deathsexmoney/episodes/mason-earle-death-sex-money https://www.wnycstudios.org/podcasts/deathsexmoney/episodes/...

ActorNightly 4y ago
How intensive rock climbing in terms of cardio load? It seems that cardio health was the biggest contributor to not getting serious Covid, seems surprising that an athlete would get this.
- chas 4y ago
  He developed ME/CFS in 2018 without a known cause (to the best of my knowledge).
- qbasic_forever 4y ago
  Very intensive with cardio. A big wall climb is probably 2-3k vertical feet or more of climbing. That's like climbing hundreds and hundreds of floors in a building (but even steeper and harder). Speed climbers can ascend something that high in a matter of hours. It's a big cardio and endurance demand.

lisper 4y ago

Wow. Worth noting that Simone [1] had some serious health challenges of her own not too long ago. https://www.youtube.com/watch?v=7x5XRQ07sjU https://www.youtube.com/watch?v=7x5XRQ07sjU Something about being a female STEM YouTuber... :-( --- [1] https://en.wikipedia.org/wiki/Simone_Giertz https://en.wikipedia.org/wiki/Simone_Giertz

Alan_Dillman 4y ago
[flagged]
- lisper 4y ago
  That's undoubtedly why you are still healthy.
wyldfire 4y ago
Interesting! From the Wikipedia article above: > Giertz is a descendant of Lars Magnus Ericsson, founder of Ericsson.
AdamJacobMuller 4y ago
Hopefully firmly in the had serious health challenges category. If you don’t know her videos, I think Simone produces some of the greatest content on youtube. Deeply authentic, highly skilled, with a really funny subtext of knowing absurdist humor to them. Really great content.
- lisper 4y ago
  Yeah, definitely this. My favorite: https://www.youtube.com/watch?v=jKv_N0IDS2A https://www.youtube.com/watch?v=jKv_N0IDS2A Just the first 50 seconds are pure gold.
  - AdamJacobMuller 4y ago
    Truckla is great, truckla is love but truckla is also useful. Bubble wrap player machine is deeply pointless and amazing https://youtu.be/nLGs7auWdgE https://youtu.be/nLGs7auWdgE https://youtu.be/M1B3gATS0GE https://youtu.be/M1B3gATS0GE the proud parent machine was profoundly disturbing.

DantesKite 4y ago

That's unfortunate. I had some complications after COVID as well (with blood tests showing decreased T cell counts and a CD4+/CD8+ T ratio that's well below the healthy range. I think one thing that took me by surprise is just how COVID seems to damage the immune system in some people, causing T cell exhaustion (chronic exposure to an antigen causing molecular changes in T cell expression so there's more inhibitory receptors and they're not as functional). If you've noticed some strange symptoms a few months after having COVID, like thrush, unexpected autoimmune issues, or just feel like infections hit you a lot harder nowadays, I highly recommend doing a lymphocyte subpanel blood test. You can order them online. Might help clarify some things. I'm currently using a protein called Thymic Protein-A to increase my CD4+ T cell counts and it's been somewhat successful in making me feel better (doubled my lymphocytes which were on the low end for a few years in about a week), though time will tell whether or not it's ultimately a successful treatment (especially since CD4+ T cell counts increase at a rate of about 10 cells per microliter in healthy human adults). Just my two cents. Obviously it's different for everyone. But I think every bit of information counts while we're still trying to figure this thing out.

cbeach 4y ago

[flagged]

narrator 4y ago
[flagged]
53739920 4y ago
This always pops up when someone says they have long covid. My favorite is when someone got long covid after contracting covid in April 2020, and people came out of the woodwork to blame the vaccine--almost a year before the vaccine was rolled out to the general public.
- cbeach 4y ago
  Ask yourself -why- this always pops up. We're learning a lot more about the side-effects of mRNA vaccines since a court denied Pfizer the 75-year moratorium it requested on releasing its test results to the public, and since studies have been released into the safety of the vaccines https://pubmed.ncbi.nlm.nih.gov/36055877/ https://pubmed.ncbi.nlm.nih.gov/36055877/
AlbertoGP 4y ago
She did get a COVID-19 vaccine, do not know which (https://twitter.com/thephysicsgirl/status/1377044196977037312 https://twitter.com/thephysicsgirl/status/137704419697703731...), but anyway here is her response in December about the suggestion that her condition was caused by it: https://twitter.com/thephysicsgirl/status/1601438687476142081 https://twitter.com/thephysicsgirl/status/160143868747614208...
- t0bia_s 4y ago
  She mention one study, but there are plenty other studies that rising questions about vaccine safety. ------- Autopsy Histopathologic Cardiac Findings in 2 Adolescents Following the Second COVID-19 Vaccine Dose https://meridian.allenpress.com/aplm/article/146/8/925/47778 https://meridian.allenpress.com/aplm/article/146/8/925/47778... Risks of myocarditis, pericarditis, and cardiac arrhythmias associated with COVID-19 vaccination or SARS-CoV-2 infectionhttps://www.nature.com/articles/s41591-021-01630-0#Aff1 https://www.nature.com/articles/s41591-021-01630-0#Aff1 Vaccine-Associated Myo/Pericarditis in Adolescents: A Stratified Risk-Benefit Analysis https://onlinelibrary.wiley.com/doi/10.1111/eci.13759 https://onlinelibrary.wiley.com/doi/10.1111/eci.13759 Persistent Cardiac Magnetic Resonance Imaging Finfings in a Cohort of Adolescents with Post-Coronavirus Disease 2019 mRNA Vaccine Myopericarditis https://www.jpeds.com/article/S0022-3476(22)00282-7/fulltext https://www.jpeds.com/article/S0022-3476(22)00282-7/fulltext Epidemiology of Acute Myocarditis/Pericarditis in Hong Kong Adolescents Following Comirnaty Vaccination https://pubmed.ncbi.nlm.nih.gov/34849657/ https://pubmed.ncbi.nlm.nih.gov/34849657/ Age and sex-specific risks of myokarditis and pericarditis following Covid-19 messenger RNA vaccines https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9233673/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9233673/ Goddard K.et al: Risk of myokarditis and pericarditis following BT162b2 and mRNA-1273 COVID-19 vaccination, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9273527/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9273527/ Bardosh K.et al: COVID-19 Vaccine Boosters for Young Adults: A Risk-Benefit Assessment and Five Ethical Arguments against Mandates at Universities https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4206070 https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4206070 Oster M.E. et al: Myocarditis Cases Reported After mRNA-Based COVID-19 Vaccination in the US From December 2020 to August 2021 https://jamanetwork.com/journals/jama/fullarticle/2788346 https://jamanetwork.com/journals/jama/fullarticle/2788346 Lai F.T. et al: Carditis After COVID-19 Vaccination With a Messenger RNA Vaccine and an Inactivated Virus Vaccine https://www.acpjournals.org/doi/full/10.7326/M21-3700?rfr_da https://www.acpjournals.org/doi/full/10.7326/M21-3700?rfr_da... Massari M. et al: Postmarketing active surveillance of myokarditis and pericarditis following vaccination with COVID-19 mRNA vaccines in persons aged 12 to 39 years in Italy: A multi-database, self-controlled case series study https://pubmed.ncbi.nlm.nih.gov/34849657/ https://pubmed.ncbi.nlm.nih.gov/34849657/ SARS-CoV-2 Vaccination and Myocarditis in a Nordic Cohort Study of 23 Million Residents https://jamanetwork.com/journals/jamacardiology/fullarticle/ https://jamanetwork.com/journals/jamacardiology/fullarticle/... A Case of Vaccine-Induced Thrombocytopenic Thrombosis Manifesting as Cerebral Venous Thrombosis and Intracerebral Bleed https://ncbi.nlm.nih.gov/pmc/articles/PMC9894637/ https://ncbi.nlm.nih.gov/pmc/articles/PMC9894637/ Protection and waning of natural and hybrid COVID-19 immunity https://www.medrxiv.org/content/10.1101/2021.12.04.21267114v https://www.medrxiv.org/content/10.1101/2021.12.04.21267114v... Acute Inflammatory Diseases of the Central Nervous System After SARS-CoV-2 Vaccination https://nn.neurology.org/content/10/1/e200063.abstract https://nn.neurology.org/content/10/1/e200063.abstract A Comparison of Cases of Autoimmune Hepatitis After Vaccination Against COVID-19 https://journals.lww.com/acgcr/Fulltext/2023/01000/It_Can_t_ https://journals.lww.com/acgcr/Fulltext/2023/01000/It_Can_t_... Cerebral venous sinus thrombosis after COVID-19 vaccination: a case report and literature review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9853928/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9853928/ COVID-19 vaccine surveillance report Week 42 https://assets.publishing.service.gov.uk/government/uploads/ https://assets.publishing.service.gov.uk/government/uploads/...

dgeiser13 4y ago

[flagged]

deleted 4y ago
[deleted]

BenFranklin100 4y ago

[flagged]

deleted 4y ago
[deleted]
deleted 4y ago
[deleted]
gus_massa 4y ago
Another possibility is that the ME/CFS diagnosis is correct, but it's unrelated to the covid-19 infection. I think the initial symptoms of ME/CFS are sometimes mild and ignored, and it's difficult to have a definite starting day and be sure it didn't star before the covid infection, or started after but is unrelated.
Semaphor 4y ago
A streamer I watch has autoimmune diseases and CFS. Since she got Covid last year, they both got worse. Not even close to what’s the case here, but still enough to force her to take extended breaks more often than usual. And for more anecdotes, "extremely atypical"? Extreme fatigue is pretty much the most common symptom of long COVID I heard of, why would that be atypical?
- BenFranklin100 4y ago
  You miss my point. You are assuming this has something to with COVID. Given the high prevalence of COVID, it might not at all. Do the Bayesian statistics.
  - Semaphor 4y ago
    You ignored half my message.
lamontcg 4y ago
> Chronic and severe fatigue existed long before SARS-CoV-2 appeared. Yeah, and it was thought to be often triggered by viral infections.

superb-owl 4y ago

ME/CFS is one of those diseases that truly scares me. It’s wildly debilitating, and we have no idea what causes it. The history of controversy surrounding it is worth a read: https://en.m.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome https://en.m.wikipedia.org/wiki/Controversies_related_to_chr...

deleted 4y ago

[deleted]

taylorfinley 4y ago

I went to high school with Dianna and was good friends with her older sis. They were both super genuine and truly wonderful people back then. I saw this on social media a few days ago from mutual friends, it's really sad to hear how much she's been impacted. Really heartening to see this community cares too. I've seen a lot of go-fund-me grift over the years and am usually an extremely skeptical person, but if Dianna's family is asking for support fwiw I believe that means they really do need it and likely don't have any other options.

hummus_bae 4y ago
[dead]
keizo 4y ago
I know taylor from high school and trust him. And know many that know Dianna. I would trust whatever support they get will go to good use. Also, taylor we going to 20 yr this summer? :| :) good to see you on this corner of the internet.
- taylorfinley 4y ago
  Woah, keizo! Great to hear from you. Man that 20 years snuck up on me quick, I just might have to try to make it home.
  - keizo 4y ago
    :) not sure i'll ever understand time.

quenched 4y ago

This is very sad to see and I wish Dianna and her family the very best for her recovery. I'm into year three of long COVID (ME/CFS) and was fortunate to not reach this level of severity, and to have improved slowly with time to mostly housebound rather than bedbound, but it is a remarkable disease. The name does it little justice, and fatigue - while certainly pathological and disabling - is not the primary feature. The disease appears unique in terms of an abnormal response to exertion. This has been characterised via two-day cardiopulmonary exercise testing. Healthy controls and even those with other severely limiting diseases will show improvement on day 2, but ME/CFS uniquely shows a reduction on the second day. Other key features are orthostatic intolerance with demonstration of reduction in cerebral blood flow in the majority on sitting/standing. Neurological symptoms including extreme sensitivity to light and sound explain her blindfold and ear protectors. Many have fluctuating cognitive slowing ("brain fog"). New insights into the metabolic derangements are being gained. Recently[1] evaluation of urine metabolomics demonstrated that healthy sedentary controls excrete many metabolites at 4 and 24 hours following an exercise challenge, while ME/CFS patients do not. Apart from the devastating effects on patients and the economic impacts of losing so many from the workforce[2], I believe that understanding the immune and metabolic derangements underlying this condition will lead to major insights across many health domains. [1] https://www.mdpi.com/1422-0067/24/4/3685 https://www.mdpi.com/1422-0067/24/4/3685 [2] https://www.nature.com/articles/s41579-022-00846-2 https://www.nature.com/articles/s41579-022-00846-2

zamnos 4y ago
That was a heartbreaking video to watch. My heart goes out to this woman and her family. In my experience, having caught covid in March 2020, fatigue is the problem. It's just that calling it "fatigue" doesn't spell out how dehabilitating that aspect is. It's maybe 100 ft/30 meters from my bed to the kitchen. At the worst of my long covid, I was getting winded walking from my bed to the kitchen. So then I'm in the kitchen, I'm supposed to make food for myself. But it's not like I could stand up for any amount of time. Chopping vegetables is right out. Making anything more advanced than microwave food was too difficult at the worst of it. And even then, figuring out the directions on them was sometimes too complicated. And I figured out C pointers and passed calculus. You don't know how your body can fail you until you can't do something that should be trivial to do but you simply can't. It's easier to see for physical maladies - you'd not ask someone with two broken legs why they can't stand up. Fatigue in a Long Covid context means it's too tiring even to just watch Netflix. That the exertion to sit there and focus your mind even slightly is beyond you. People are able to put Netflix on in the background and still fall grasp most of the story. With long covid, following a plot, just listening, with all the power you have remaining, is simply asking too much of your body. The most damning part of it is the aftermath from any significant physical exertion. Like going to the doctor in person. Remember, it's a marathon of exhaustion going from bed to the kitchen, so leaving the bed, getting dressed, going to the doctor, sitting the waiting room, filling out forms - remember your brain only barely works so writing out the answer to eben the first question, name, is a challenge. Seeing the Dr, hopefully they're of any use. Then you have to dance for them and take their tests. Finally you get home and crawl back in to bed, exhausted, so you take a nap. You wake up after that nap get some water and go back to sleep becy you're still tired. When you wake up it's literally been 4 days. You pushed yourself because going to see the doctor was important, but the overexertion of going to see the doctor wiped you out and not only were you bedridden for four days, but you were unconscious. That forces you to recalibrate your whole life. You can't just push through things and stay up a bit late or go out to see friends without stopping to think (which, again, is in and of itself a challenge in ways it never was before) is there anything I need to be conscious for in the next four days? So at least for me, "fatigue" was the primary complaint (followed by "brain fog"), it's just that without spelling out what fatigue actually means in the context of long covid, it's not apparent what that actually means.

stndef 4y ago

Very sad to see. I've seen a few posts recently from her accounts suggesting that things really haven't been good at all. I really do hope things get better, and quickly at that. Post viral wise, things can get really nasty, even if being infected with the virus doesn't appear to be that bad. I had shingles five or six years ago and have had chronic fatigue since. I'd say I was pretty fit being able to cycle 30 miles a day going back and forth between work, and now I'd consider myself lucky if I could do 1/8 that. I have a stick on me at all times in case I collapse. Congitively I'm pretty borked at points as well. I am better than a few years ago, but it's clear that I'll never be back to where I was -- I experience good days and bad weeks. Avoid COVID if you can, get your boosters and if you do get COVID or any other illness, really, please try to rest well and avoid returning back to normal too quickly if life allows for that (I know it isn't that easy). I went back to work too quickly and belive that had a significant impact on my recovery.

nirvgorilla 4y ago

[flagged]

nirvgorilla 4y ago

[flagged]

nirvgorilla 4y ago

[flagged]

zingababba 4y ago

During my first round of COVID I suddenly developed Terry's nails and extreme exercise intolerance. The tips of my fingernails were bands of dark red and the rest of my nail bed was completely white. I showed it to something like 5 different doctors and was shrugged off every time. I also started to develop skipping heart beats that got so bad it was happening hundreds of times a day. Prior to COVID I was highly active 6 days a week and had been for nearly a decade. After COVID I was finding it hard to exercise once or twice a week. This went on for years, all the while I was trying to figure out WTF was going on with me. Eventually I started supplementing copper and my heart issues went away completely within a week. I then started to supplement Iron and my nail beds started to fill back in. After a month of supplementing I got my Iron/Copper levels checked out of pocket and my ferritin was below range and my copper was just in range. I don't know if I was susceptible to this and COVID kicked me into this territory or what but man was it a shitty ride.

anshumankmr 4y ago

Is there a GoFundMe or something?

DoItToMe81 4y ago

Okay, this does not add up. She's sick and her friend's reaction is to whip out a camera and start filming and begging? Beyond that, "chronic fatigue" is mixed far more with mental illness than it is physical illness. And more often than not, long Covid fatigue does not get notably worse over time, it stays consistent or improves. I've seen long Covid first hand. I'm not sure I buy this, especially with the e-begging attached.