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Are there any services like 23andme that are more strict when it comes to data privacy or that allow me complete ownership of the data? I would love this type o

by _rs 4y ago

Are there any services like 23andme that are more strict when it comes to data privacy or that allow me complete ownership of the data? I would love this type of analysis even at a higher cost but I am scared of what might happen in the future to this data on me and children

manimino 4y ago
I have used Nebula. Did a group buy of the kits with several friends to obfuscate shipping address. Signed up via a protonmail address, and accessed the site only through VPN. Then deleted my data after downloading all of it. I believe it would be very difficult to tie my identity to my genome because of these steps.
- nordsieck 4y ago
  > I believe it would be very difficult to tie my identity to my genome because of these steps. That probably depends on the closest relatively of yours that they have in their database. If you only have one sibling and they're in the database, you're probably boned no matter the precautions you take.
aantix 4y ago
Nebula is mentioned below for full DNA sequencing. I've used them for my son. As for analysis, you could try one of these. https://geneticgenie.org https://geneticgenie.org https://mthfrsupport.com https://mthfrsupport.com https://promethease.com https://promethease.com https://foundmyfitness.com/genetics https://foundmyfitness.com/genetics
inetknght 4y ago
> Are there any services like 23andme that are more strict when it comes to data privacy or that allow me complete ownership of the data? https://familytreedna.com https://familytreedna.com. I used to work for them > 2 years ago. 1. Order a Family Finder kit. When you get the kit but before submitting your swab, sign up for the account but opt-out of _all_ matching services. 2. Send your swab in. 3. When you get your results in (~6 weeks usually), download your raw data from the website. 4. Call their support line and ask for your data to be deleted.
- ccvannorman 4y ago
  4. Call their support line and ask for your data to be deleted. I've been burned too many times in the past to ever believe this line, even if the people at the company are well intentioned.
tylermac1 4y ago
Health care providers can order genetic testing to help discover how your body metabolizes tons of things. I recently had it done and it illuminated an entire class of anti-depressant that has very little efficacy for me.
- FollowingTheDao 4y ago
  Those tests are so limited in scope, I would not bother.
moltar 4y ago
I bought a kit on Amazon from a major provider. It was a Father’s Day promo. So it’s safe to assume at least half of purchases were gifts. And Amazon FBA does not share buyer data with the seller. Plus then I used all anonymous services, like junk email, VPN to sign up.

by _rs 4y ago

manimino 4y ago

I have used Nebula. Did a group buy of the kits with several friends to obfuscate shipping address. Signed up via a protonmail address, and accessed the site only through VPN. Then deleted my data after downloading all of it. I believe it would be very difficult to tie my identity to my genome because of these steps.

nordsieck 4y ago
> I believe it would be very difficult to tie my identity to my genome because of these steps. That probably depends on the closest relatively of yours that they have in their database. If you only have one sibling and they're in the database, you're probably boned no matter the precautions you take.

aantix 4y ago

Nebula is mentioned below for full DNA sequencing. I've used them for my son. As for analysis, you could try one of these. https://geneticgenie.org https://geneticgenie.org https://mthfrsupport.com https://mthfrsupport.com https://promethease.com https://promethease.com https://foundmyfitness.com/genetics https://foundmyfitness.com/genetics

inetknght 4y ago

> Are there any services like 23andme that are more strict when it comes to data privacy or that allow me complete ownership of the data? https://familytreedna.com https://familytreedna.com. I used to work for them > 2 years ago. 1. Order a Family Finder kit. When you get the kit but before submitting your swab, sign up for the account but opt-out of _all_ matching services. 2. Send your swab in. 3. When you get your results in (~6 weeks usually), download your raw data from the website. 4. Call their support line and ask for your data to be deleted.

ccvannorman 4y ago
4. Call their support line and ask for your data to be deleted. I've been burned too many times in the past to ever believe this line, even if the people at the company are well intentioned.

tylermac1 4y ago

Health care providers can order genetic testing to help discover how your body metabolizes tons of things. I recently had it done and it illuminated an entire class of anti-depressant that has very little efficacy for me.

FollowingTheDao 4y ago
Those tests are so limited in scope, I would not bother.

moltar 4y ago

I bought a kit on Amazon from a major provider. It was a Father’s Day promo. So it’s safe to assume at least half of purchases were gifts. And Amazon FBA does not share buyer data with the seller. Plus then I used all anonymous services, like junk email, VPN to sign up.