3 ms·
Since you said one of your siblings has it, I assume you are half siblings? I have hereditary hemochromatosis, and since my sisters and I have different mothers
by clsec 4y ago
Since you said one of your siblings has it, I assume you are half siblings? I have hereditary hemochromatosis, and since my sisters and I have different mothers, I am the only one in my family to have it. It takes two parents who carry the gene.
Anyway, yes, bloodletting (properly called phlebotomy) is really the only way to deal with it. The first 3 years after my diagnosis my hematologist and I tried out quite a few things to help control it, including diet modifications and different time intervals between phlebotomies. We ended up settling on phlebo every 6 weeks and eat whatever I want.
- pacaro 4y agoThe variant in question is autosomal recessive, so my sibling has two copies of the genes and I got lucky and have one
- dennis_jeeves1 4y agoRegarding diet: a carnivore diet helps. This is counter intuitive because red meat is supposed to contain a lot of iron. I will leave it at that and I will let you research. Tip look at: Shawn Baker's videos