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May I ask where you are located, roughly? YMMV but I was given genetics tests for my leukaemia, polycythemia vera and Crohns. All were routine. I actually had

May I ask where you are located, roughly? YMMV but I was given genetics tests for my leukaemia, polycythemia vera and Crohns. All were routine. I actually had more issues getting a thiopurine metabolites test ordered than I did with any of my genetic tests.

FollowingTheDao 4y ago
I am in the US. My issue is that I was diagnosed with a mood disorder before anything else. So now, even though my white blood counts, never get above four, well, not until recently. They dismiss any other problems I have. Because I think it’s all because of my brain. It’s so idiotic I can’t stand it. I can’t have any other illness because I have a mental illness. I’ve been telling doctors about my low white blood cell count for a decade. Not one of them does further testing on it. I don’t know how to convince them or what to say , I think one of the problems is I take such good care of my health and so when they look at me I look fine. But it does not show how I feel inside and it does not show the fatigue I deal with. Yo, I want to say you’re lucky that you have leukemia because that’s easily spotted. but I’m one of those people with this borderline chronic health issue that they don’t wanna waste time on because I’m not actively dying. I’m just suffering my whole life.
- atdrummond 4y ago
  It actually took years for my Leukaemia to be sorted, funnily enough, due to the impacts my autoimmune disease and medications had on my blood levels. I also was told for years I was faking my stomach pains until my leg nearly fell off due to a MRSA infection, which subsequently turned into a case of pyoderma gangrenosum. I was then finally diagnosed with Crohn’s disease. I will say there are some good doctors out there. My email is always open to HN readers if you want some help or advice here. Best of luck regardless.

FollowingTheDao 4y ago

I am in the US. My issue is that I was diagnosed with a mood disorder before anything else. So now, even though my white blood counts, never get above four, well, not until recently. They dismiss any other problems I have. Because I think it’s all because of my brain. It’s so idiotic I can’t stand it. I can’t have any other illness because I have a mental illness. I’ve been telling doctors about my low white blood cell count for a decade. Not one of them does further testing on it. I don’t know how to convince them or what to say , I think one of the problems is I take such good care of my health and so when they look at me I look fine. But it does not show how I feel inside and it does not show the fatigue I deal with. Yo, I want to say you’re lucky that you have leukemia because that’s easily spotted. but I’m one of those people with this borderline chronic health issue that they don’t wanna waste time on because I’m not actively dying. I’m just suffering my whole life.

atdrummond 4y ago
It actually took years for my Leukaemia to be sorted, funnily enough, due to the impacts my autoimmune disease and medications had on my blood levels. I also was told for years I was faking my stomach pains until my leg nearly fell off due to a MRSA infection, which subsequently turned into a case of pyoderma gangrenosum. I was then finally diagnosed with Crohn’s disease. I will say there are some good doctors out there. My email is always open to HN readers if you want some help or advice here. Best of luck regardless.