> but nobody has said, "We should consider looking at your DNA to see what's up here. I'm really interested and want to figure this out with you." You could se

> but nobody has said, "We should consider looking at your DNA to see what's up here. I'm really interested and want to figure this out with you." You could sequence your own genome and use a service to compare it against the ClinVar database that correlates genetic variations with research. Odds are that you won't find anything useful to your specific condition. Most autoimmune issues are acquired, not genetic. With few exceptions, the common genetic variations associated with many diseases can't be used in a diagnostic manner. A genetic variant that increases your odds of contracting a rare disease by 10X might sound significant, but if it's truly a rare disease then you could be going from 0.001% to 0.01% odds. The unfortunate truth is that if your condition doesn't match something that can be diagnosed with the tests available to your doctors, there isn't much they can do to forge ahead with new research on their own. That's the role of researchers, not doctors. And it takes decades to get to the bottom of conditions, if ever. You might have some luck scouring the internet for similar-sounding conditions and groups who research them. Occasionally you can find your way into clinical trials or registered on waitlists for researchers who might need candidates to test.