A friend of mine is in a similar situation. She has a condition that is already very rare in kids, and usually subsides after the age of 18-20 or so, yet she st

A friend of mine is in a similar situation. She has a condition that is already very rare in kids, and usually subsides after the age of 18-20 or so, yet she still suffers from it at 24. There are only about a handful known cases in medical literature. In addition she has another very rare genetic condition that interacts with the first, making here the only documented case of both of these conditions interacting. She's taking it pretty well though, even if it means that at some point they'll probably have to amputate her right hand or even the whole arm...