2 ms·
You experience nearly mirrors mine with the exception of age and the circumstances of care. But the need to exhaustively advocate for even basic care was, to be
by bane 4y ago
You experience nearly mirrors mine with the exception of age and the circumstances of care. But the need to exhaustively advocate for even basic care was, to be honest, harder than losing my father in the end. It's painful to say, but after he died the relief my family felt from not having to fight every "care provider" constantly for every single minor thing was palpable.
You have a follow-on comment about your options being cheaper and less time-consuming. My experience also perfectly mirrors yours. My father chose literally the cheapest, smallest resource consuming (in terms of time, people, and expertise), and fastest path available today, and it seemed at every turn we were confronted with a medical professional demanding a useless, time consuming, expensive, resource intensive, activity -- only to then fail to deliver on that activity when they actually had to do it due to: expense, resources, and time.
There were times when I felt like I was talking to confused farm animals, not people with some of the highest education possible in our civilization.
- AdamJacobMuller 4y ago> It's painful to say, but after he died the relief my family felt from not having to fight every "care provider" constantly for every single minor thing was palpable. It's awful to even think about it, let alone articulate it, but, that year was terribly difficult on me and even worse for my mother. My grandfather was a proud man and having people need to help him with every aspect of daily living (I'll leave the details to what I suspect is not your imagination) was undignified. By the time he passed it was obvious there was no quality of life left and death was a mercy. It doesn't have to only be a mercy for the patient.