4 ms·
Some people are interpreting that more broadly than I intended it. I'm squeamish about this kind of medical gene editing in specific. There is a genetic disord
by DoreenMichele 4y ago
Some people are interpreting that more broadly than I intended it. I'm squeamish about this kind of medical gene editing in specific.
There is a genetic disorder that runs in my family. I used to be on a bunch of email lists for the condition. People with the condition routinely volunteer for drug studies in a desperate attempt to get help that current medical science can't provide them and/or to get free care for a condition that's very medically expensive.
People with serious medical conditions are all too often treated like lab rats whose lives don't really matter. Treating people like me humanely isn't a real high priority. Quality of life is not much part of the discussion. Keeping us alive a little longer is the only metric that seems to count and horrifying things get done in the name of it.