3 ms·
Sorry to say, I've been through a very similar situation 3 separate times in 3 different cities as the primary caregiver. The least intuitive and most important
by edw519 15y ago
Sorry to say, I've been through a very similar situation 3 separate times in 3 different cities as the primary caregiver. The least intuitive and most important thing I learned each time was that there are many wonderful options available but you have to find them. Once you do, it's amazing how much easier things get for everybody involved.
There are many levels of care available between intensive care and hospice and plenty of funding available to pay for almost all of them if you look hard enough. Sadly, OP mentions none of this. What an unhelpful article.
There is part-time home health care, full-time home health care, assisted living, nursing homes with multiple levels of appropriate care, and multiple levels of hospice care. (Six days to live or you're not accepted? Shame on them. What kind of thing is that to put caregivers through?)
There is also tons of "care for the caregiver" which is indispensable. I don't how I would have made it without that.
Most importantly, I can't say enough for all of the wonderful people who cared for my loved ones, in many ways much better than I ever could have. They're out there, dedicating their lives to make this inevitable transition better for everyone.
Theresa Brown, I suggest a follow-up "how to" article for caregivers. Unlike this piece, that would take a little research, but could be your contribution to this difficult, but easily addressed problem. You could make it the piece I wish I had read instead of figuring it out myself at the worst moment of my life. Please use the resources of the New York Times to finish the work you've barely started here.