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Ive been in a similar situation. My mom was diagnosed with terminal lung cancer. Her care was more about improving quality of life. Whilst struggling to deal w
by pryelluw 4y ago
Ive been in a similar situation. My mom was diagnosed with terminal lung cancer. Her care was more about improving quality of life.
Whilst struggling to deal with all the different variables, a very wise surgeon told me to keep a notebook of everything. Medications, complaints, pain reports, etc. This allowed to share more direct data with doctors and nurses. Mom’s QOL increased noticeably. Mine did too as a result as her main care taker (I was living in the hospital with her).
Second the doctor told me to do the same for myself. Start journaling about yourself. Now, I also have ADHD. Doing it was a challenge. What worked for me was doing so immediate after waking up. I would write about whatever right when I woke up and be done for the day. Sometimes I’d write again during the day but not very often.
Third, know that taking care of a loved one is really fucking hard. Oh my god so so hard. You will feel guilty and powerless. Like the biggest piece of shit failure. That’s normal. Try and be a little kinder to yourself.
Fourth, put yourself first. Take care of you first. Otherwise you won’t be able to take care of her well enough. You first puts her in the best possible position.
Fifth, ADHD can be improved with medication. It does help. Don’t be shy to try it. You might also be depressed due to the situation. Make sure to tell your doctor.
Sixth, be open to receiving help. There are organizations and hospitals out there that have services for people in your same situation. I even received grief counseling during the hospital stay. Don’t trust google on this one. Pick up the phone and call the local hospitals. Explain the situation to anyone who will listen and ask if they have any free services or know of any free services you can leverage.
There’s a light at the end of the tunnel. If you need to speak your mind and share, there’s groups like this one: https://m.facebook.com/groups/113354218750970/ https://m.facebook.com/groups/113354218750970/
These groups are very helpful and full info and support. Take advantage of them and learn quicker. I was able to find a good online group and got so much from it (FREE).
Best of luck.
- nerdyadventurer 4y ago> Oh my god so so hard. You will feel guilty and powerless. Like the biggest piece of shit failure. That’s normal. Try and be a little kinder to yourself. With ADHD's emotional dis-regulation this is what I felt too. > Fifth, ADHD can be improved with medication. It does help. Don’t be shy to try it. I am actually on Ritalin, while it sort of works, improve my mood, boost my motivation, but my working memory is still in flux, body temperature increase after taking them and I notice effects Ritalin decrease over time. Another thing with Ritalin is I feel mentally bad when medication starts to wear off. I will ask for off label med like Bupropion, which is cheap, long lasting and have no withdrawal symptoms like stimulants. Thanks for the all advice, really appreciate it! Keep fighting!
- pryelluw 4y agoI take vyvense and works well. Tried others but this one worked best. I know it’s hard but one day at a time. Think of it as a wave. Up and down. Up and down. It’ll all pass. Life continues. Everything will be alright.