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Interesting take. I was in a paediatric cardiac ICU when my daughter battled with heart disease for 7 of her 8 month life. Another dad who we got close to in t
by kingsloi 4y ago
Interesting take.
I was in a paediatric cardiac ICU when my daughter battled with heart disease for 7 of her 8 month life. Another dad who we got close to in the ICU said the phrase "practising medicine says it all...".
My experience is same same but different. It was during COVID, so we welcomed the nurse change, sad/happy to see one go and welcome another. Paediatric ICUs and their staff, I'd say are top tier in most respects. Parents are involved with most/all decisions, and nurses/drs respect most wishes, don't like your child being disturbed at night for non-100%-necessary stuff? Ask social services (etc) to print out a sign with your wishes and stick it on your room door. May not 100% work, but worth a shot. It did in ours.
Sleep is somewhat respected as this is when babies develop/heal best, unfortunately it's an ICU, and these are sick kids who need 24/7 complex care, so there's sometimes little wiggle room. I attended a conference in Chicago on heart disease and it's outcomes (npcqic.org), and sleep and proper nutrition (not just feeding TPN) are definitely hot topics. I know the NICUs are extra hard on any additional sleep/disturbance other than 100% necessary.
But shoutout to nurses, drs, any medical staff, ICUs are sterile, haunting, traumatic places. I witnessed things I can never forget. They do the same, and have to do it again, and again.
- tomcam 4y agoCried a little reading that. What agony, losing a child in slow motion. My best to you and yours.
- froggertoaster 4y ago> What agony, losing a child in slow motion. These words are both poetic and heart-wrenching.
- hackeraccount 4y agoI'm a cynic to some degree. I think suffering doesn't ennoble people for the most part - it just makes them bitter and angry. I realize this wasn't your point - and who knows maybe I'm misreading you - but this comment makes me reconsider my view on that. I have a child and having to go through something like what you describe makes me feel sick. Doing that and then having any degree of empathy - sympathy even - for the people involved is a credit to you.