4 ms·

> You're not angered that you were advised to give this to a 15 year old with no upside even after he was hospitalized for 2 weeks as a result?! I am being as

> You're not angered that you were advised to give this to a 15 year old with no upside even after he was hospitalized for 2 weeks as a result?! I am being as honest as I can be with regards to our feelings on this. I can't say we are angry about that incident at all. I think I can say we are not happy about not having been provided with all of the information before he got his shot. Frankly, I don't even remember if the data was available (I do think it was, BTW). Remember, at the time, only about 700 cases. Of course, the outcome might have had something to do with the lack of negative emotions. I can probably admit our position today would be massively different had we had to face a range of negative outcomes post-hospitalization. These can range from life-long afflictions to death.

deleted 4y ago
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Shocka1 4y ago
I'm happy for you that you aren't mad, as there is no reason to wear the burden of anger in your life. At a young age I had pericarditis (idiopathic), which developed into both myocarditis and pericarditis. I've now had pericarditis off and on for over 10 years now and hope that it never comes back for your child. "I think I can say we are not happy about not having been provided with all of the information before he got his shot." You pretty much hit the nail on the head here and is my biggest gripe about this whole fiasco. I'm not sure about your situation now, but if this disease recurs and you feel like your kid's heart doctor has no idea what they are talking about, I recommend either Mayo Clinic or Cleveland Clinic. I don't have Facebook, but I've been told there are many support groups for this disease as well there. Good luck to you, and my prayers go out to you and your family.