2 ms·
A skin condition called Epidermalisis Bullosa, aka the Butterfly Children or cotton wool kids. I was lucky, though, I have an even rarer form of the already ver
by ehnto 4y ago
A skin condition called Epidermalisis Bullosa, aka the Butterfly Children or cotton wool kids. I was lucky, though, I have an even rarer form of the already very rare condition that made mine localized and only present after initial trauma, so I have many very deeply scarred areas from repeated trauma but otherwise normal skin. All the people I knew from my support group as a child are dead, died in their teens or twenties. That is how severe the other version of this condition is. As I have gotten older I have gotten more resilient essentially, you really can't pick that I have anything wrong unless you see the scars. I lead a very normal life now.