4 ms·

A lot of modern medicine is factory work, there is no time or interest for the patient. It's the same reason people with symptoms that aren't immediately obviou

A lot of modern medicine is factory work, there is no time or interest for the patient. It's the same reason people with symptoms that aren't immediately obvious get diagnosed with anxiety. It can be life-destroying when it's systemic, a lot of disabled people find that when they age out of pediatric care no one will touch them, not doctors, not physiotherapists, nobody.

candiddevmike 4y ago
Does this apply globally or just in the US? Do folks in other countries with disabilities have better experiences?
- ad404b8a372f2b9 4y ago
  Same thing globally from the people I've talked to, I only have personal experience with American and European healthcare though. A problem we have in Europe is that the regulation of medical professions prevents anyone from paying for better care. There were times in my life I would have paid any amount of money to see a professional but was unable to find anyone who could take my money. That means we all receive equal care but it's equally poor and the government doesn't put the necessary resources in place to improve it.
  - bombcar 4y ago
    > There were times in my life I would have paid any amount of money to see a professional but was unable to find anyone who could take my money. Isn't that when you fly to the Mayo Clinic and throw money at the silly Americans?
    - ad404b8a372f2b9 4y ago
      Can't fly if you're bed-ridden.
- Arisaka1 4y ago
  I am far from disabled but I have multiple chronic issues, one of them being 100% visible to the naked eye and I've been told by multiple doctors to "not stress about it". And we're taking about a nail color change, a fingers temperature change during winter, and a constant feeling of headache that feels like worms are throwing a party under my hair (which they clearly don't). Also, for what it's worth, I'm from Europe and I tried both the free and the private health sector in my country. My only other options are to fly abroad for "medical tourism", but that would require a lot of money.
  - knaekhoved 4y ago
    > And we're taking about a nail color change, a fingers temperature change during winter This sounds like pretty normal stuff...
- sen 4y ago
  I’m physically disabled and have various mental issues (ASD, ADHD, Bipolar, and some other minor things, all diagnosed). In Australia I find our medical system to be incredibly supportive of disabled people as long as you don’t go to the “bottom of the barrel” doctors (eg local big medical centres). Those places are purely set up to churn people through for sickie notes or basic scripts. Every town has “family practice” GPs and even with me having moved all over the country I’ve always found them to be very accomodating. Almost any appointment can be done over the phone or Telehealth (government video conference system) if I don’t feel I can make it in that day. Scripts can also be done like that then SMSed to my phone, or emailed direct to my local pharmacy who drop the medications off same day for free (paid by government). If I do have to go in physically to an appointment, they always have my full medical record thanks to our MyGov system and have a tl;dr on the screen when I go in, so I’m not wasting time going over everything again and again (which is how it worked before MyGov). Overall I love our medical system. It’s absolutely not perfect but I’ve lived overseas in a few places and despite loving the idea of living overseas again (and having various serious issues with other aspects of this country) I stay here purely for the medical support I get with my conditions.
  - mianos 4y ago
    Keep in mind, if you follow economics, there is not enough money produced by working people to fund the growth of Medicare and NDIS. Not tax, even if they taxed everyone much much more, there will still not be enough money by 2027.

candiddevmike 4y ago

Does this apply globally or just in the US? Do folks in other countries with disabilities have better experiences?

ad404b8a372f2b9 4y ago
Same thing globally from the people I've talked to, I only have personal experience with American and European healthcare though. A problem we have in Europe is that the regulation of medical professions prevents anyone from paying for better care. There were times in my life I would have paid any amount of money to see a professional but was unable to find anyone who could take my money. That means we all receive equal care but it's equally poor and the government doesn't put the necessary resources in place to improve it.
- bombcar 4y ago
  > There were times in my life I would have paid any amount of money to see a professional but was unable to find anyone who could take my money. Isn't that when you fly to the Mayo Clinic and throw money at the silly Americans?
  - ad404b8a372f2b9 4y ago
    Can't fly if you're bed-ridden.
Arisaka1 4y ago
I am far from disabled but I have multiple chronic issues, one of them being 100% visible to the naked eye and I've been told by multiple doctors to "not stress about it". And we're taking about a nail color change, a fingers temperature change during winter, and a constant feeling of headache that feels like worms are throwing a party under my hair (which they clearly don't). Also, for what it's worth, I'm from Europe and I tried both the free and the private health sector in my country. My only other options are to fly abroad for "medical tourism", but that would require a lot of money.
- knaekhoved 4y ago
  > And we're taking about a nail color change, a fingers temperature change during winter This sounds like pretty normal stuff...
sen 4y ago
I’m physically disabled and have various mental issues (ASD, ADHD, Bipolar, and some other minor things, all diagnosed). In Australia I find our medical system to be incredibly supportive of disabled people as long as you don’t go to the “bottom of the barrel” doctors (eg local big medical centres). Those places are purely set up to churn people through for sickie notes or basic scripts. Every town has “family practice” GPs and even with me having moved all over the country I’ve always found them to be very accomodating. Almost any appointment can be done over the phone or Telehealth (government video conference system) if I don’t feel I can make it in that day. Scripts can also be done like that then SMSed to my phone, or emailed direct to my local pharmacy who drop the medications off same day for free (paid by government). If I do have to go in physically to an appointment, they always have my full medical record thanks to our MyGov system and have a tl;dr on the screen when I go in, so I’m not wasting time going over everything again and again (which is how it worked before MyGov). Overall I love our medical system. It’s absolutely not perfect but I’ve lived overseas in a few places and despite loving the idea of living overseas again (and having various serious issues with other aspects of this country) I stay here purely for the medical support I get with my conditions.
- mianos 4y ago
  Keep in mind, if you follow economics, there is not enough money produced by working people to fund the growth of Medicare and NDIS. Not tax, even if they taxed everyone much much more, there will still not be enough money by 2027.