4 ms·

Thank you. I have been experimenting and evolving with diets since shortly after diagnosis. The first year I was symptomatic but it went away pretty dramaticall

Thank you. I have been experimenting and evolving with diets since shortly after diagnosis. The first year I was symptomatic but it went away pretty dramatically after starting Paleo, I believe because general inflammation went down. I'm also pretty sure that I'm doing so badly because of the stress I've experienced during the pandemic, really at a level I couldn't imagine, and, having forgotten I have MS, I didn't do nearly enough to counter it and instead used coffee and dairy, two things known to be avoided with MS (by some patients at least, doctors IME don't even mention it). I would do anything and sacrifice anything if it could remedy the current issue, but it seems it's more related to some longer-term evolution that doesn't respond to these things... We'll see. I've only quit coffee about 2 weeks ago when I definitely noticed my legs going numb after running wasn't because or overexertion... And then I made the connection with my cognitive issues.

tomohawk 4y ago
I forgot about the dairy part - also dairy free. The brain fog can sneak up on you. Try to keep a journal of everything you're eating and how you're feeling. It will help you notice issues and track them down.
antiherovelo 4y ago
Moving to an entirely plant based diet has made all the difference in the world for me. It isn’t a cure, but excellent nutrition makes a HUGE difference. Eating entirely plant-based can also be done very very cheaply if you’re careful. Walking or other gentle exercise is essential - it’s hard. It hurts. But it WILL slow down the progression of the disease. Keep moving! Do some reading about your legal rights - if you have a diagnosed case of MS in the United States, you have all kinds of ways of protecting yourself from job termination. If your HR department isn’t evil, they should help you here. If they are evil, keep careful records of everything so you can sue the crap out of them if they fail to protect you as the law requires. Don’t give up! It’s a disease, not an identity. Don’t let it define you or control your thinking. You’ve got this.
- loceng 4y ago
  Some people cheer for the opposite: that a carnivore diet (or animal product only, but dairy/milk/cheese is bad and highly inflammatory for many) is what essentially cured them of mainly ailments. So, just to put that balanced perspective to OP.
  - sooyoo 4y ago
    The conclusion from such dietary changes always seems to be that being more conscious about your food is key. High quality ingredients, no pesticides or enhancers that are meant to make crap taste less crap. Then in the end it doesn't matter whether you go carnivor or vegan or whatnot. Just don't eat everything deep-fried or full of refined sugars.
    - loceng 4y ago
      Well, I fully agree with your first two sentences. Then genetics likely are the next in line for what is healthy, not harmful, for your body.

tomohawk 4y ago

I forgot about the dairy part - also dairy free. The brain fog can sneak up on you. Try to keep a journal of everything you're eating and how you're feeling. It will help you notice issues and track them down.

antiherovelo 4y ago

Moving to an entirely plant based diet has made all the difference in the world for me. It isn’t a cure, but excellent nutrition makes a HUGE difference. Eating entirely plant-based can also be done very very cheaply if you’re careful. Walking or other gentle exercise is essential - it’s hard. It hurts. But it WILL slow down the progression of the disease. Keep moving! Do some reading about your legal rights - if you have a diagnosed case of MS in the United States, you have all kinds of ways of protecting yourself from job termination. If your HR department isn’t evil, they should help you here. If they are evil, keep careful records of everything so you can sue the crap out of them if they fail to protect you as the law requires. Don’t give up! It’s a disease, not an identity. Don’t let it define you or control your thinking. You’ve got this.

loceng 4y ago
Some people cheer for the opposite: that a carnivore diet (or animal product only, but dairy/milk/cheese is bad and highly inflammatory for many) is what essentially cured them of mainly ailments. So, just to put that balanced perspective to OP.
- sooyoo 4y ago
  The conclusion from such dietary changes always seems to be that being more conscious about your food is key. High quality ingredients, no pesticides or enhancers that are meant to make crap taste less crap. Then in the end it doesn't matter whether you go carnivor or vegan or whatnot. Just don't eat everything deep-fried or full of refined sugars.
  - loceng 4y ago
    Well, I fully agree with your first two sentences. Then genetics likely are the next in line for what is healthy, not harmful, for your body.