4 ms·
> I doubt there are any cases ... of data-sharing actually causing stigma or economic penalties. That's a strong claim. It took me 10 second to find these 4
by nonrandomstring 4y ago
> I doubt there are any cases ... of data-sharing actually causing
stigma or economic penalties.
That's a strong claim.
It took me 10 second to find these 4 stories of leaks of up to 45
million records and many written accounts of distress, lost jobs and
broken relationships as consequences.
https://news.trendmicro.com/2021/07/28/biggest-health-sector-data-breaches-1st-half-of-202$ https://news.trendmicro.com/2021/07/28/biggest-health-sector...
https://www.cpomagazine.com/cyber-security/medical-data-leaks-have-exposed-45-million-reco$ https://www.cpomagazine.com/cyber-security/medical-data-leak...
https://securereading.com/medical-data-leak-database-of-humana-customers-leaked-online/ https://securereading.com/medical-data-leak-database-of-huma...
https://americanretrieval.com/medical-records-breach/ https://americanretrieval.com/medical-records-breach/
But as my sibling poster says too, your unevidenced doubts are neither
here nor there, because it's the (equally unevidenced with respect to
specifics) doubts of ordinary people that matter.
And let's be honest, that mistrust is justified in a time where data
leaks and abuse is rampant.
Medical professionals and researchers may all be saints, but their
halos are only as bright as the company they keep... Google, Meta,
Microsoft, Amazon... and other big-tech cloud infrastructure on which
sensitive data systems are built.
Of course it's a tragedy. Somewhere in that data are cures and
remedies. But we can't have nice things if some are allowed to crap in
the punch-bowl and drive the guests out of the party.