4 ms·

Brain fog is a common term in autoimmune and other communities. People get dismissed constantly because they look fine. If you try learn, and or do something a

Brain fog is a common term in autoimmune and other communities. People get dismissed constantly because they look fine. If you try learn, and or do something about it, you get a hypochondriac / lazy label. Like having severe flu. But no outwards symptoms. No one believes you. You can sort of function in short bursts. But gotta rest constantly. Trying to think is very hard.

barrysteve 4y ago
Autoimmune diseases could be more prevalent than we last thought. They remain statistically under-diagnosed and frequently people don't go deep enough into finding their root illness (most people don't have the tools) and get caught in broad categories like ADHD. It's strange we live in a world of hyper-connected, hyper-monitored data collection but autoimmune diseases still have decades-long delays on getting a correct diagnosis. There's some real world changing stuff to be made in new tech connecting people to their root illness and allowing the voluntary option to visit a doctor to get it solved.
- cjbgkagh 4y ago
  hEDS is possibly the most under diagnosed condition yet is so easy to test and has been known about since Hippocrates. 90%+ of people with it will never be diagnosed, those that are take decades of gaslighting first. Many people with it will go on to develop Me/CFS/LongCovid, and many LongCovid studies are finding that they have 30% of their cohort with it.
  - barrysteve 4y ago
    Tech could probably start narrowing down health solutions for people. I wonder. Theorycrafting for a moment. Someone who owns facial recognition cameras, could also analyze a swarm of other features, by the means of big tech style research and development. Gait analysis, body temperature with millimeter wave scanners, pose and skeletal estimation, arm->body ratio, skin pallor, hair length, face mood and health markers, maybe analyse mouth or teeth images with enough resolution and correct camera angle. With pose estimation and kinematic animation you could start harvesting body language and mannerisms. Common ticks, impulsive behaviour can be grouped together. If you also record and analyze speech, across phones and mall microphones, one could isolate out tourettes (and some speech pathologies?). An awful lot of vaguery could be made clear... I wonder if treating these diagnostic conditions like a programming language and organising the diagnostic routes properly, we could allow for a technique for the user in combination with a properly designed website, to individually narrow down their own experience into a doctors apppointment, and waste less resources on 'wild goose chase' doctor appointments, intiated by clueless patients. What ever happened to Watson's autodiagnosing abilities?
    - cjbgkagh 4y ago
      I used to work in behavioral analytics for a big internet company. It was pretty obvious that behaviors are largely genetic and you can pin things down to particular conditions. Eventually we’ll find out which genes do what so you’ll just need to do DNA sequencing for most physical/psychological conditions. IBM happened to Watson. They’re still around but I don’t think their approach is very good.
- ce4 4y ago
  I think it's systemic, there's other diseases like stomach ulcer disease that took a long time to pin down the exact cause. https://en.m.wikipedia.org/wiki/Timeline_of_peptic_ulcer_disease_and_Helicobacter_pylori https://en.m.wikipedia.org/wiki/Timeline_of_peptic_ulcer_dis...

barrysteve 4y ago

Autoimmune diseases could be more prevalent than we last thought. They remain statistically under-diagnosed and frequently people don't go deep enough into finding their root illness (most people don't have the tools) and get caught in broad categories like ADHD. It's strange we live in a world of hyper-connected, hyper-monitored data collection but autoimmune diseases still have decades-long delays on getting a correct diagnosis. There's some real world changing stuff to be made in new tech connecting people to their root illness and allowing the voluntary option to visit a doctor to get it solved.

cjbgkagh 4y ago
hEDS is possibly the most under diagnosed condition yet is so easy to test and has been known about since Hippocrates. 90%+ of people with it will never be diagnosed, those that are take decades of gaslighting first. Many people with it will go on to develop Me/CFS/LongCovid, and many LongCovid studies are finding that they have 30% of their cohort with it.
- barrysteve 4y ago
  Tech could probably start narrowing down health solutions for people. I wonder. Theorycrafting for a moment. Someone who owns facial recognition cameras, could also analyze a swarm of other features, by the means of big tech style research and development. Gait analysis, body temperature with millimeter wave scanners, pose and skeletal estimation, arm->body ratio, skin pallor, hair length, face mood and health markers, maybe analyse mouth or teeth images with enough resolution and correct camera angle. With pose estimation and kinematic animation you could start harvesting body language and mannerisms. Common ticks, impulsive behaviour can be grouped together. If you also record and analyze speech, across phones and mall microphones, one could isolate out tourettes (and some speech pathologies?). An awful lot of vaguery could be made clear... I wonder if treating these diagnostic conditions like a programming language and organising the diagnostic routes properly, we could allow for a technique for the user in combination with a properly designed website, to individually narrow down their own experience into a doctors apppointment, and waste less resources on 'wild goose chase' doctor appointments, intiated by clueless patients. What ever happened to Watson's autodiagnosing abilities?
  - cjbgkagh 4y ago
    I used to work in behavioral analytics for a big internet company. It was pretty obvious that behaviors are largely genetic and you can pin things down to particular conditions. Eventually we’ll find out which genes do what so you’ll just need to do DNA sequencing for most physical/psychological conditions. IBM happened to Watson. They’re still around but I don’t think their approach is very good.
ce4 4y ago
I think it's systemic, there's other diseases like stomach ulcer disease that took a long time to pin down the exact cause. https://en.m.wikipedia.org/wiki/Timeline_of_peptic_ulcer_disease_and_Helicobacter_pylori https://en.m.wikipedia.org/wiki/Timeline_of_peptic_ulcer_dis...