3 ms·

There is a view of "rights and freedoms" that is related to privacy, where rights are positively defined, and freedom is a limit on the scope and ability or pow

There is a view of "rights and freedoms" that is related to privacy, where rights are positively defined, and freedom is a limit on the scope and ability or powers of the state or other party to encroach on it, a kind of "shall make no law" clause. It makes more sense in the context of a freedom, where a platform provider would simply not be entitled to collect, use, disclose, or retain information without the express consent of the data subject. This is how health information privacy works, and privacy legislation around some governments and agencies using PII. Freedom is something for people, not the transnational conspiracies we call "platforms" these days. As arms of policy, the FAANGs are in effect, modern Hudsons Bay and the British and Dutch East India Companies. Somehow we've made corporations sovereign on the internet, and the only mitigations we have on it are from free software and encryption tech - which they routinely evade and sabotage on behalf of their advertisers, but also for government agencies whose activities are otherwise regulated by constitutional and other guaranteed freedoms. This axis of state and industry colluding against citizen "users," has a bunch of ugly precedents. Imo, addressing the "I have nothing to hide," argument at all is a tarpit. These are neutralized and disengaged people who are content to bargain and live as liquid subjects, and expecting anything more than repeating official talking points and bromides from them misunderstands their survival strategy. I don't think you change anyones mind, you can only activate or neutralize them based on their existing beliefs. I'd recommend letting the "I have nothing to hide" people alone, and instead, encourage active minds to develop the skills to build technology and products that shape the future.

salawat 4y ago
Even PHI is monetized, btw. You know those HIPAA forms you sign? They tend to authorize sharing of your info with insurers and their partners, and often the sponsors of the plan if it is through an employer indirectly through metrics and reporting. If enough attention is paid, and data correlated carefully enough, one can deanonymize on that alone if one cared to.
- motohagiography 4y ago
  Indeed, recording consent in healthcare has become a joke and the incentives for regulators to enforce it aren't there either. I worked on a platform for consent directives management, and the problem wasn't technical, it was "deprioritized" by the agency responsible for it because it put limits on their discretion. I'd even say health information is worse than monetized now, it's actively politicized. I know that C19 vaccination records (names/addr/date/dosenumber) were shared with PR/oppo-research firms working for politicans involved in the rollout, and there was no consent for collection or use of that data either. We live in interesting times.:)

salawat 4y ago

Even PHI is monetized, btw. You know those HIPAA forms you sign? They tend to authorize sharing of your info with insurers and their partners, and often the sponsors of the plan if it is through an employer indirectly through metrics and reporting. If enough attention is paid, and data correlated carefully enough, one can deanonymize on that alone if one cared to.

motohagiography 4y ago
Indeed, recording consent in healthcare has become a joke and the incentives for regulators to enforce it aren't there either. I worked on a platform for consent directives management, and the problem wasn't technical, it was "deprioritized" by the agency responsible for it because it put limits on their discretion. I'd even say health information is worse than monetized now, it's actively politicized. I know that C19 vaccination records (names/addr/date/dosenumber) were shared with PR/oppo-research firms working for politicans involved in the rollout, and there was no consent for collection or use of that data either. We live in interesting times.:)