3 ms·

how serious it is? how prevalent? how persistent? how big of a public health problem it is and/or going to be? can it be treated? how well? was this known befo

by pas 4y ago

how serious it is? how prevalent? how persistent? how big of a public health problem it is and/or going to be? can it be treated? how well? was this known before? what other sources cause it?

Traubenfuchs 4y ago
A quick pubmed search shows that interest in dysautonomia existed since 1954 with a clear exponential increase of interest in it since then. -> https://pubmed.ncbi.nlm.nih.gov/?term=Dysautonomia%5BTitle%2FAbstract%5D&sort=date https://pubmed.ncbi.nlm.nih.gov/?term=Dysautonomia%5BTitle%2... As for many mystery syndromes with broad symptoms it's easily connected to covid infection, long covid and the covid vaccines. A clear and satisfying picture seems to be missing, hence me naming it mystery syndrome.
- cjbgkagh 4y ago
  Many of the mystery syndromes are different manifestations of the same condition for which dysautonomia is most often a core underlying part. By way of analogy; hEDS is clearly autosomal dominant genetic condition and has been known about since Hippocrates yet because it presents in slightly different ways it largely escapes diagnosis. hEDS is also not rare, it’s only considered rare because it’s rarely diagnosed. The fact that medical researchers and doctors can’t get something so simple right after so long means I don’t trust them with anything that is even slightly complex.
cjbgkagh 4y ago
Very serious, it’s a core component to long covid. It’s a lifetime affliction for the majority who get it (up to 10% of the general population of which less than 50% will go into remission without treatment). People who get it often lose their jobs, their health, and their relationships all while being gaslit by doctors. It is a thoroughly life destroying condition. Suicides are very common. It can be treated but not very effectively for most people. This has been known since the beginning of medicine but the modern (mis)understanding of it is 75 years old (ME/CFS). Before that it was known as neurasthenia and has had lots of names throughout history. Lots of viruses cause it; EBV is the main one. Society will manage ok, people die and others move on, but an already bad problem is going to be made substantially worse, and we’ll all be poorer for it.
- ncmncm 4y ago
  Thank you, I had not encountered this term before. Could be a very significant revelation.

by pas 4y ago

how serious it is? how prevalent? how persistent? how big of a public health problem it is and/or going to be? can it be treated? how well? was this known before? what other sources cause it?

Traubenfuchs 4y ago

A quick pubmed search shows that interest in dysautonomia existed since 1954 with a clear exponential increase of interest in it since then. -> https://pubmed.ncbi.nlm.nih.gov/?term=Dysautonomia%5BTitle%2FAbstract%5D&sort=date https://pubmed.ncbi.nlm.nih.gov/?term=Dysautonomia%5BTitle%2... As for many mystery syndromes with broad symptoms it's easily connected to covid infection, long covid and the covid vaccines. A clear and satisfying picture seems to be missing, hence me naming it mystery syndrome.

cjbgkagh 4y ago
Many of the mystery syndromes are different manifestations of the same condition for which dysautonomia is most often a core underlying part. By way of analogy; hEDS is clearly autosomal dominant genetic condition and has been known about since Hippocrates yet because it presents in slightly different ways it largely escapes diagnosis. hEDS is also not rare, it’s only considered rare because it’s rarely diagnosed. The fact that medical researchers and doctors can’t get something so simple right after so long means I don’t trust them with anything that is even slightly complex.

cjbgkagh 4y ago

Very serious, it’s a core component to long covid. It’s a lifetime affliction for the majority who get it (up to 10% of the general population of which less than 50% will go into remission without treatment). People who get it often lose their jobs, their health, and their relationships all while being gaslit by doctors. It is a thoroughly life destroying condition. Suicides are very common. It can be treated but not very effectively for most people. This has been known since the beginning of medicine but the modern (mis)understanding of it is 75 years old (ME/CFS). Before that it was known as neurasthenia and has had lots of names throughout history. Lots of viruses cause it; EBV is the main one. Society will manage ok, people die and others move on, but an already bad problem is going to be made substantially worse, and we’ll all be poorer for it.

ncmncm 4y ago
Thank you, I had not encountered this term before. Could be a very significant revelation.