Doctors all too often think that if you are experiencing something that their measurements don't validate ... that you are not sick. In my experience [6 weeks

Doctors all too often think that if you are experiencing something that their measurements don't validate ... that you are not sick. In my experience [6 weeks hospitalization; now chronic rare disease] it's that the doctors simply lack the knowledge, techniques, and instruments to identify the problem. Rare diseases are an interesting thing. Individually, each rare disease is challenging to study, and hence poorly understood, hard to diagnose, etc. However, with thousands to choose from, getting a rare disease isn't all that rare. However, getting good care while having one might very well be.