3 ms·
> Say for example you have leukemia later in life. A researcher wants to study what it is about your leukemia that makes it different from the rest of your bloo
by V__ 4y ago
> Say for example you have leukemia later in life. A researcher wants to study what it is about your leukemia that makes it different from the rest of your blood.
That could still be done if the data/samples were anonymized and the ID were only given to the patient. For general research, anonymized would also work perfectly fine.
- hoistbypetard 4y agoAfter public evidence of usage like this, who would believe that ID was only given to the patient?
- V__ 4y agoThat's why data protection and privacy laws are needed first.
- asdff 4y agoIt is anonymized when its used for research purposes, but you still would want to have some key to match it up to the patient should they have more information to add down the road. Say the patient took some drug for their leukemia and had remission, that is valuable metadata to include along with the raw sequence data in a database.