4 ms·

I'm glad this just came up. My ten-year old nephew has been in and out of hospital stays for the past 4 years and was just finally diagnosed with Crohn's and re

I'm glad this just came up. My ten-year old nephew has been in and out of hospital stays for the past 4 years and was just finally diagnosed with Crohn's and released from a long stay at the hospital this week. They've now got him on a diet that they claim seems to help a bit but I haven't seen it. As a result of having undiagnosed Crohn's for some years he has fallen behind in school, with friends, and so on. If anybody is aware of any support groups, diets, good doctors, or any advice in general for young kids with Crohn's, please post. I may not have time to respond but I'll definitely read through responses. If an email is more appropriate you can send one to qbwkmaz@protonmail.com. Thanks in advance.

timonovici 4y ago
In my case, medicine and diet had little effect. And I was in pretty bad shape, i got to the emergency room several times a week with awful abdominal pain, vomiting, constipation. A different doctor adviced me to eat anything I want, but for at least half a year to eat kefir with every meal. That worked. Whenever I feel like my digestive tract is getting funny, i add a few bottles of kefir for a few days.
- deleted 4y ago
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- danachow 4y ago
  You have actual Crohn's or IBS? Because your symptoms while distressing don't sound like Crohn's at all. Crohn's is an autoimmune inflammatory condition with actual tissue destruction. People with Crohn's flares don't show up to the ED with constipation, they often show up with profusely bloody diarrhea. Additionally weight loss and anemia. They may likely require admission for high dose steroids. People with Crohn's will often need surgery. What you're describing sounds more like IBS. A bottle of kefir is unlikely to hurt. However, I am quite skeptical that such a thing has any prophylactic effect once a recurrent process like Crohn's is set in motion - like pissing on a gasoline fire. A bottle of kefir is not going to touch an actual Crohn's flare at all. There's no good evidence that any specific diets seem to help the chronic course of Crohn's unfortunately, and it's not like no one has looked.

timonovici 4y ago

In my case, medicine and diet had little effect. And I was in pretty bad shape, i got to the emergency room several times a week with awful abdominal pain, vomiting, constipation. A different doctor adviced me to eat anything I want, but for at least half a year to eat kefir with every meal. That worked. Whenever I feel like my digestive tract is getting funny, i add a few bottles of kefir for a few days.

deleted 4y ago
[deleted]
danachow 4y ago
You have actual Crohn's or IBS? Because your symptoms while distressing don't sound like Crohn's at all. Crohn's is an autoimmune inflammatory condition with actual tissue destruction. People with Crohn's flares don't show up to the ED with constipation, they often show up with profusely bloody diarrhea. Additionally weight loss and anemia. They may likely require admission for high dose steroids. People with Crohn's will often need surgery. What you're describing sounds more like IBS. A bottle of kefir is unlikely to hurt. However, I am quite skeptical that such a thing has any prophylactic effect once a recurrent process like Crohn's is set in motion - like pissing on a gasoline fire. A bottle of kefir is not going to touch an actual Crohn's flare at all. There's no good evidence that any specific diets seem to help the chronic course of Crohn's unfortunately, and it's not like no one has looked.