4 ms·

Can you elaborate a bit more on how to repair nerve damage?

by huherto 15y ago

Mz 15y ago
It's not any one thing I did. Nearly 11 years ago, I spent 3.5 months mostly bedridden and then was diagnosed with "atypical cystic fibrosis". During the course of my long decline, I had lost a number of teeth and was left with nerve damage to one side of my face. I also had a fall while very ill and was left with a numb spot on the top of my foot (and other foot issues). My main focus was on a) killing infection and b) reversing the pathology of my genetic disorder. As a side effect, the numb spot went away and I have partially regained some of the lost control over my left cheek. My experience has been that removing enough environmental stressors (like toxic household cleaners), killing infection, and providing sufficient nutritional support will allow the body to heal, even when one has been very severely damaged. As best I can tell, some of the key nutritional supports for healing my nerves were glyconutrients, Celtic sea salt, and the right oils. I became fairly fanatical about avoiding oils I did not tolerate well and consuming adequate quantities of oils I did tolerate well, which for me included organic butter and organic coconut oil. I find that peanut oil does incredibly evil things to my body. There are a few others I try to avoid at all times and there are a number of oils that I tolerate okay, occasionally, in small quantities. As I heal, my tolerances for things change. I took things to real extremes for a time. I did a great deal of research and addressed a long list of nutritional deficiencies that I identified symptomatically. Then I researched which chemical form of various supplements were the optimal ones to take, based on a variety of factors including personal allergies. I did all this by trial and error, with support from internet groups and internet friends while essentially spurned by my doctors. I don't see any reason this model couldn't be improved upon with appropriate research and support. Edit: I will add that I also took high doses of b-vitamins, carnitine to absorb one of them, got off the advil that was depleting the b-vitamins, and at times ate high cholesterol meals, like bacon and eggs with butter on flat bread. These were also important. I just didn't pay as much attention to the process of healing my nerves because it wasn't a specific goal. The nerve damage I had was minor whereas CF is very deadly and I was extremely ill for quite a long time.
- mrspeaker 15y ago
  How did you find out about this? I lost my hearing in one ear due to an acoustic neuroma (the operation damaged my auditory nerve). I've never heard (though, I've also never looked!) that sea salts/oils/vitamins could repair damage. Where/how did you start your research? Any tips?
  - Mz 15y ago
    I routinely get downvoted and/or lambasted for answering questions like this publicly on HN. Overtime is available this week for me at work, so I honestly don't have the time to try to give you a meaningful, useful answer on a public forum where it is politically incorrect to discuss what I know on the topic. That's just way too much work right this minute. Please write me privately and I will happy to do my best to answer your questions. Email address is in my profile. Thanks so much.

Can you elaborate a bit more on how to repair nerve damage?

by huherto 15y ago

Can you elaborate a bit more on how to repair nerve damage?

Mz 15y ago

It's not any one thing I did. Nearly 11 years ago, I spent 3.5 months mostly bedridden and then was diagnosed with "atypical cystic fibrosis". During the course of my long decline, I had lost a number of teeth and was left with nerve damage to one side of my face. I also had a fall while very ill and was left with a numb spot on the top of my foot (and other foot issues). My main focus was on a) killing infection and b) reversing the pathology of my genetic disorder. As a side effect, the numb spot went away and I have partially regained some of the lost control over my left cheek. My experience has been that removing enough environmental stressors (like toxic household cleaners), killing infection, and providing sufficient nutritional support will allow the body to heal, even when one has been very severely damaged. As best I can tell, some of the key nutritional supports for healing my nerves were glyconutrients, Celtic sea salt, and the right oils. I became fairly fanatical about avoiding oils I did not tolerate well and consuming adequate quantities of oils I did tolerate well, which for me included organic butter and organic coconut oil. I find that peanut oil does incredibly evil things to my body. There are a few others I try to avoid at all times and there are a number of oils that I tolerate okay, occasionally, in small quantities. As I heal, my tolerances for things change. I took things to real extremes for a time. I did a great deal of research and addressed a long list of nutritional deficiencies that I identified symptomatically. Then I researched which chemical form of various supplements were the optimal ones to take, based on a variety of factors including personal allergies. I did all this by trial and error, with support from internet groups and internet friends while essentially spurned by my doctors. I don't see any reason this model couldn't be improved upon with appropriate research and support. Edit: I will add that I also took high doses of b-vitamins, carnitine to absorb one of them, got off the advil that was depleting the b-vitamins, and at times ate high cholesterol meals, like bacon and eggs with butter on flat bread. These were also important. I just didn't pay as much attention to the process of healing my nerves because it wasn't a specific goal. The nerve damage I had was minor whereas CF is very deadly and I was extremely ill for quite a long time.

mrspeaker 15y ago
How did you find out about this? I lost my hearing in one ear due to an acoustic neuroma (the operation damaged my auditory nerve). I've never heard (though, I've also never looked!) that sea salts/oils/vitamins could repair damage. Where/how did you start your research? Any tips?
- Mz 15y ago
  I routinely get downvoted and/or lambasted for answering questions like this publicly on HN. Overtime is available this week for me at work, so I honestly don't have the time to try to give you a meaningful, useful answer on a public forum where it is politically incorrect to discuss what I know on the topic. That's just way too much work right this minute. Please write me privately and I will happy to do my best to answer your questions. Email address is in my profile. Thanks so much.