3 ms·
cuts both ways with rare diseases. mine's progressed to the point where I need a wheelchair outside the house. I do daily PT, but my arms are messed up too so m
by sterlind 4y ago
cuts both ways with rare diseases. mine's progressed to the point where I need a wheelchair outside the house. I do daily PT, but my arms are messed up too so my exercises are necessarily very light. Wheelchair use is literally a sedentary lifestyle, so I'm at risk of all the couch-potato issues.
Considering approximately $0 has been spent on drug discovery for my disorder (genetic, rare, not fatal), I'd substantially benefit from exercise-in-a-pill drugs if those come out, as would a lot of others in my position.