4 ms·
ps: I don't know if this applies to you, but since there is overlap between us (my condition is like a permanent flu: brain fog, general body aches, slow at eve
by lcall 4y ago
ps: I don't know if this applies to you, but since there is overlap between us (my condition is like a permanent flu: brain fog, general body aches, slow at everything, oversensitive to stimuli like noises or movement):
Learning pacing (managing activity levels, following a sustainable routine) and general routines for managing life have been very important for me to get to a stable, somewhat predictable state. There is a web site that covers the pacing reasons and strategies for chronic fatigue people really well--if you want I can dig up the URL. And staying organized within those routines (managing todo lists so I dont forget things etc) has been necessary, because I just can't keep the essentials and planned tasks all in my head now, since I do them so slowly and gradually.
And practicing good mental habits (a learning process, over time), and reinforcing them with notes that I review periodically (anki, and other in the computer, and some daily with a set of mnemonics that grew up over time) has been necessary and very helpful also, to not get in a bad set of thoughts, but to respond in a good/planned way.
- ajolly 4y agoI would be very interested in that link.
- lcall 4y agohttp://cfsselfhelp.org http://cfsselfhelp.org My doctor (Lucinda Bateman, a CFS research coordinator kind of person and founder of a center, BHC aka https://batemanhornecenter.org https://batemanhornecenter.org which has other materials including a CFS self-care brochure kind of thing, and ed. materials for doctors--they provide education that counts in professional training hours I gather, etc--not a cure so far though) recommended the site once. I have very many notes & other URLs, not all of known quality. More ideas than one can try reasonably, in a lifetime, I guess, so in large part I am waiting for COVID-19 ("long covid") research to shed more light on CFS, and answers to my prayers, and I expect to get better. My efforts at routines (work vs. rest, doing things one at a time, per plan and in order), mental habits etc have expanded greatly beyond that. There is some stuff at my web site (in profile) which has my email in the footer if you ever want to discuss details, ideas, or questions further. It's still hard but I feel peaceful and pointed in the right direction. Best to you.