4 ms·

Here is an interesting news article I saw recently about chronic pain, in case it is useful. It seemed like it could be a balanced look at the field of managin

by lcall 4y ago

Here is an interesting news article I saw recently about chronic pain, in case it is useful. It seemed like it could be a balanced look at the field of managing it, now, for what it may be worth: https://www.cnn.com/2022/06/27/health/haider-warraich-chronic-pain-qa-wellness/index.html https://www.cnn.com/2022/06/27/health/haider-warraich-chroni... I became disabled due to chronic fatigue syndrome, and as I progressed until gradually unable to keep a job, I also went through what you are of being denied disability benefits, but a good doctor (specialist) helped me w/ an attorney referral, which along with letters from former coworkers. HR and family as to my condition, some careful record-keeping (hard and draining), and being able to stay with family until things stabilized more, were a big help when I went to the administrative law judge finally about it. My security is church and family, family and church (and given the government's track record, that is where it will stay--maybe states could do better, but I don't think the US fed ever could--long set of experiences there). So I can sympathize: even though our conditions are different, I think there is some overlap. For my situation at least, graded exercise therapy or the belief it is all in one's head, are very unhelpful ideas (much could be said). But now things have stabilized, I believe I will get better eventually, and there is hope for me, and there is hope for you. Don't ever give up. Here is another recent article (related to overcoming depression with a multi-pronged approach, not trying to do everything at once but in thoughtful steps), which I thought was very good (has some religious aspects, which are actually relevant): https://www.churchofjesuschrist.org/study/liahona/2022/07/07_new-hope-for-deeper-healing-from-depression-and-anxiety?lang=eng https://www.churchofjesuschrist.org/study/liahona/2022/07/07... Again, don't give up. It can really get to where things are OK.

lcall 4y ago
ps: I don't know if this applies to you, but since there is overlap between us (my condition is like a permanent flu: brain fog, general body aches, slow at everything, oversensitive to stimuli like noises or movement): Learning pacing (managing activity levels, following a sustainable routine) and general routines for managing life have been very important for me to get to a stable, somewhat predictable state. There is a web site that covers the pacing reasons and strategies for chronic fatigue people really well--if you want I can dig up the URL. And staying organized within those routines (managing todo lists so I dont forget things etc) has been necessary, because I just can't keep the essentials and planned tasks all in my head now, since I do them so slowly and gradually. And practicing good mental habits (a learning process, over time), and reinforcing them with notes that I review periodically (anki, and other in the computer, and some daily with a set of mnemonics that grew up over time) has been necessary and very helpful also, to not get in a bad set of thoughts, but to respond in a good/planned way.
- ajolly 4y ago
  I would be very interested in that link.
  - lcall 4y ago
    http://cfsselfhelp.org http://cfsselfhelp.org My doctor (Lucinda Bateman, a CFS research coordinator kind of person and founder of a center, BHC aka https://batemanhornecenter.org https://batemanhornecenter.org which has other materials including a CFS self-care brochure kind of thing, and ed. materials for doctors--they provide education that counts in professional training hours I gather, etc--not a cure so far though) recommended the site once. I have very many notes & other URLs, not all of known quality. More ideas than one can try reasonably, in a lifetime, I guess, so in large part I am waiting for COVID-19 ("long covid") research to shed more light on CFS, and answers to my prayers, and I expect to get better. My efforts at routines (work vs. rest, doing things one at a time, per plan and in order), mental habits etc have expanded greatly beyond that. There is some stuff at my web site (in profile) which has my email in the footer if you ever want to discuss details, ideas, or questions further. It's still hard but I feel peaceful and pointed in the right direction. Best to you.

by lcall 4y ago

lcall 4y ago

ps: I don't know if this applies to you, but since there is overlap between us (my condition is like a permanent flu: brain fog, general body aches, slow at everything, oversensitive to stimuli like noises or movement): Learning pacing (managing activity levels, following a sustainable routine) and general routines for managing life have been very important for me to get to a stable, somewhat predictable state. There is a web site that covers the pacing reasons and strategies for chronic fatigue people really well--if you want I can dig up the URL. And staying organized within those routines (managing todo lists so I dont forget things etc) has been necessary, because I just can't keep the essentials and planned tasks all in my head now, since I do them so slowly and gradually. And practicing good mental habits (a learning process, over time), and reinforcing them with notes that I review periodically (anki, and other in the computer, and some daily with a set of mnemonics that grew up over time) has been necessary and very helpful also, to not get in a bad set of thoughts, but to respond in a good/planned way.

ajolly 4y ago
I would be very interested in that link.
- lcall 4y ago
  http://cfsselfhelp.org http://cfsselfhelp.org My doctor (Lucinda Bateman, a CFS research coordinator kind of person and founder of a center, BHC aka https://batemanhornecenter.org https://batemanhornecenter.org which has other materials including a CFS self-care brochure kind of thing, and ed. materials for doctors--they provide education that counts in professional training hours I gather, etc--not a cure so far though) recommended the site once. I have very many notes & other URLs, not all of known quality. More ideas than one can try reasonably, in a lifetime, I guess, so in large part I am waiting for COVID-19 ("long covid") research to shed more light on CFS, and answers to my prayers, and I expect to get better. My efforts at routines (work vs. rest, doing things one at a time, per plan and in order), mental habits etc have expanded greatly beyond that. There is some stuff at my web site (in profile) which has my email in the footer if you ever want to discuss details, ideas, or questions further. It's still hard but I feel peaceful and pointed in the right direction. Best to you.