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I went through a very similar thing with ME/CFS and hEDS (which has a chronic pain component). Before I even knew what was I knew that I was on the decline. I w
by cjbgkagh 4y ago
I went through a very similar thing with ME/CFS and hEDS (which has a chronic pain component). Before I even knew what was I knew that I was on the decline. I was doing ok at work but my ability to maintain a working pace kept diminishing. I went from full time to part time to less than part time to the occasional contracting. I ended up having to do a bit of a Hail Mary to try to save myself. I took a bunch of stimulants for three months and made some software that I was able to sell for enough money to keep afloat. It was niche software that was obviously going to make money but it was a lot of unpleasant work. I likened it toilet scrubbing work. I knew if it didn't work I'd run out of money and without family support my backup plan was to take a long walk off a short pier. Since then I've been able to find out the underlying problem, no thanks to doctors who were all less than helpful, and now treat it fairly successfully with a variety of meds.
I guess my advice would be, do whatever is needed to make money, no matter how unpleasant, so that you can survive long enough to figure out what is wrong and get treatment. And don't rely on doctors for treatment.
- hotpotamus 4y ago> I guess my advice would be, do whatever is needed to make money, no matter how unpleasant, so that you can survive long enough to figure out what is wrong and get treatment. The greatest TV show ever made (IMHO of course) was actually based on this premise, only the main character was a chemist, not a developer.
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- Arete314159 4y agoYour story is very familiar to me....I worked for years in a failing body, trying to make enough money to survive. It sounds like you've found treatments that help you, but if not the Center for Complex Diseases is great with both ME/CFS and hEDS. If you have spine issues due to hEDS there are some PT's in the Bay Area that specialize in craniocervical instability and related issues. Just FYI.
- cjbgkagh 4y agoI gave up on doctors a long long time ago. I found that I was far better at diagnosing and treating myself than any doctor I've ever met and I've met a lot of them. I get the meds I need on the black/gray market. I can get research peptides that are not FDA approved and they've been great. It is way more effective than anything a PT or even a doctor could do. I also do weightlifting and take special care of my hormones and diet. The ME/CFS is fine these days as well, I had a relapse with the vaccine booster but was able to medicate myself out of it.
- tashmahalic 4y agoI can relate. Is there a way I can message you? (maybe via Reddit?)
- deleted 4y ago[deleted]