5 ms·

I've been struggling with the same sort of thing for 8 years now. I've been to dozens of doctors in several different countries but never got a proper diagnosis

I've been struggling with the same sort of thing for 8 years now. I've been to dozens of doctors in several different countries but never got a proper diagnosis. From my own research and observations I'm quite confident it is, as you elude to, an auto-immune related disease. The two major triggers for me are exercise; particularly anaerobic e.g weightlifting, and alcohol. Alcohol actually alleviates the symptoms for a day or more and then undoubtedly i'll struggle for a few days after that. Which points to alcohol's suppressive effects on the immune system. I really really hope this, and similar research[1], turns into something tangible [1] https://med.stanford.edu/news/all-news/2019/04/biomarker-for-chronic-fatigue-syndrome-identified.html https://med.stanford.edu/news/all-news/2019/04/biomarker-for...

pcocko 4y ago
I'm in the same boat. My main problem is atypical facial pain and I don't have a solution after visiting several neurologists and other specialists
kilroy123 4y ago
I've been dealing with autoimmune issues for years as well. I have yet to find a doctor that is willing to help me get to the bottom of it. I too have seen doctors in multiple countries. For me, the trigger is carbohydrates. Doesn't make having a good social life easy. I'm on a forced ketogenic diet because of it.
- FollowingTheDao 4y ago
  Yes, for me as well. I would say, if you are doing Keto, watch your Omega 3/6 balance. My brother did it for a year and focused on mainly red meats. He lost a bunch of weight but the inflammation from the Omega 6 is what probably caused his ankylosing spondylitis and triple bypass. I quickly became manic when I only eat red meat.
  - kilroy123 4y ago
    You know that's actually really good advice. That is something I should be more mindful of. Thank you
  - throwaway202022 4y ago
    > the inflammation from the Omega 6 is what probably caused his ankylosing spondylitis and triple bypass. How confident are you that this is the case? This is now the second story I've read of someone on a keto/carnivore diet having to get a triple bypass after eating too much red meat. Was his omega-3/omega-6 ratio really that much worse than that of the average person not on such a diet (not that that's a great standard to compare against, but the average person is also not getting triple bypass surgery)? I know there's a lot of evidence against the notion that saturated fats cause CVD, and omega-6s and inflammation is a compelling case, but I'm worried we're missing something.
- insaider 4y ago
  Interesting, why do you think carbs are a trigger for you? I always have bad IBS symptoms when the other symptoms flare up but I haven't been able to find any foods that seem to directly correlate with it.
  - kilroy123 4y ago
    I don't think, I know. After a lot of trail and error it's a night and day difference. Intermittent fast and eat very low carb – no stomach problems. Eat too many carbs more than ~25-35 – stomach problems.

pcocko 4y ago

I'm in the same boat. My main problem is atypical facial pain and I don't have a solution after visiting several neurologists and other specialists

kilroy123 4y ago

I've been dealing with autoimmune issues for years as well. I have yet to find a doctor that is willing to help me get to the bottom of it. I too have seen doctors in multiple countries. For me, the trigger is carbohydrates. Doesn't make having a good social life easy. I'm on a forced ketogenic diet because of it.

FollowingTheDao 4y ago
Yes, for me as well. I would say, if you are doing Keto, watch your Omega 3/6 balance. My brother did it for a year and focused on mainly red meats. He lost a bunch of weight but the inflammation from the Omega 6 is what probably caused his ankylosing spondylitis and triple bypass. I quickly became manic when I only eat red meat.
- kilroy123 4y ago
  You know that's actually really good advice. That is something I should be more mindful of. Thank you
- throwaway202022 4y ago
  > the inflammation from the Omega 6 is what probably caused his ankylosing spondylitis and triple bypass. How confident are you that this is the case? This is now the second story I've read of someone on a keto/carnivore diet having to get a triple bypass after eating too much red meat. Was his omega-3/omega-6 ratio really that much worse than that of the average person not on such a diet (not that that's a great standard to compare against, but the average person is also not getting triple bypass surgery)? I know there's a lot of evidence against the notion that saturated fats cause CVD, and omega-6s and inflammation is a compelling case, but I'm worried we're missing something.
insaider 4y ago
Interesting, why do you think carbs are a trigger for you? I always have bad IBS symptoms when the other symptoms flare up but I haven't been able to find any foods that seem to directly correlate with it.
- kilroy123 4y ago
  I don't think, I know. After a lot of trail and error it's a night and day difference. Intermittent fast and eat very low carb – no stomach problems. Eat too many carbs more than ~25-35 – stomach problems.