> In reality, the doctor’s responsibility is being pushed to the patient In reality, your choice is your responsibility. Even if one could delegate medical pow

> In reality, the doctor’s responsibility is being pushed to the patient In reality, your choice is your responsibility. Even if one could delegate medical power of attorney to a health care provider, it would be unethical for them to hold a dual role. Chronic conditions that are not well characterized and addressed by medicine are awful and as you said are a combined burden: the condition in of itself and the effort necessary to address the condition. The science and practice cannot progress fast enough to address the long tail of rare disease. Informed consent is a principle in medical ethics and medical law that a patient should have sufficient information before making their own free decisions about their medical care. A healthcare provider is often held to have a responsibility to ensure that the consent that a patient gives is informed, and informed consent can apply to a health care intervention on a person, conducting some form of research on a person, or for disclosing a person's information. Informed consent is, in fact, a fundamental principle in the field of health protection, obviously wanting to mark the very close and unavoidable connection between the need for consent and the inviolability of the right to health. https://en.wikipedia.org/wiki/Informed_consent https://en.wikipedia.org/wiki/Informed_consent