Hopefully you never get something unrecognized by current medical knowledge. You visit progressively more esteemed experts: local, regional, national, global.

Hopefully you never get something unrecognized by current medical knowledge. You visit progressively more esteemed experts: local, regional, national, global. Then you get to the top, and (in my experience) that’s it. I thought for sure there was a “ok now we hand this off to the labs so we can learn” step… but, no. It was just a shrug and literally “come back in 8 months if you’re still having problems.” I became my own lab and fixed my problem. I reported my findings to the doctors, and never heard back. Pretty disappointing.