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I tried to sign up but it disallows me from doing so as I'm not in the USA. which does make sense from an admin/legal perspective. However, if he needs South A
by r4vik 15y ago
I tried to sign up but it disallows me from doing so as I'm not in the USA. which does make sense from an admin/legal perspective.
However, if he needs South Asian bone marrow, isn't the best place to look South Asia?
Is there an ethnic minority international bone marrow donor system anywhere?
Maybe we should build one?
[edit]
http://www.wired.com/medtech/genetics/news/2007/03/MATCHPIA http://www.wired.com/medtech/genetics/news/2007/03/MATCHPIA
looks like someone came to a similar conclusion
[/edit]
- tibbon 15y agoI do like the idea of building one, or making a format that the national registries can exchange information easily in. I have to wonder if there's all sorts of privacy/medical/HIPPA stuff that stops/slows this.
- nquinlan 15y agoI don't know much about HIPAA and medical privacy, but I do know it only aplies in the US, and (I think) you can sign your way out of it. However, that said there would still be a bunch of concerns, involving who has access to what.
- r4vik 15y agoI mean just get them to sign it away with a disclaimer that says 'i release this data under a creative commons licence' and host it somewhere that HIPAA doesn't apply