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I have CFS/ME/Dysautonomia and apart from the lack of physical damage to the lungs I don’t see much difference at all between what I have and Long Covid. Becaus

I have CFS/ME/Dysautonomia and apart from the lack of physical damage to the lungs I don’t see much difference at all between what I have and Long Covid. Because of the medical gaslighting that is still pervasive around CFS/ME I just tell people I had Covid and am experiencing long Covid despite the fact that I don’t think I’ve had it and my symptoms existed long before the outbreak. I have hEDS which is a autosomal dominant mutation that almost always results in getting CFS/ME. My hope is that the number of people afflicted with long Covid will make it impossible to ignore and lead to effective treatments. It also makes sense that a number of people who get long Covid would have got CFS/ME eventually anyway either on their own or via another disease stressing them into it. It seems that the likelihood of getting CFS/ME is determined by genetic predisposition with some people unable to get it at all.

randomcarbloke 5y ago
>I don’t see much difference at all between what I have and Long Covid Nor do I, it's psychosomatic or depression, I expect those seeking these diagnoses will instead now claim to have "long covid".
- cjbgkagh 5y ago
  That is entirely false. There are now very clear diagnostic tests that can prove it’s false. The original proponents of psychosomatic (published in Lancet) have recently been forced to recant given the mountain of evidence against them. Unfortunately we are still living with the damage done from the original gaslighting. I can assure you doctors are no help with CFS/ME or Long COVID and I get no benefit from a diagnosis of either of them. I don’t have a formal diagnosis, there is no point as there is no help, nor would insurance cover treatments. The only difference is that LongCovid has happened to so many people at the same time that it’s almost impossible to ignore - although many people, institutions, and governments will definitely try to ignore it.
  - randomcarbloke 5y ago
    >have recently been forced to recant given the mountain of evidence against them. They truly haven't, you need to keep up-to-date on Wessely. I always found the justification hilarious: "it's obviously a real condition because it responds so favourably to antidepressants and anxiolytics..." Yes, I wonder why... >The only difference is that LongCovid has happened to so many people at the same time that it’s almost impossible to ignore Just another social contagion, and a sexy one people have read about exhaustively for two years.
    - cjbgkagh 5y ago
      Why would I follow people who clearly don’t know what they are talking about. NICE guidelines now explicitly exclude exclude GET and CBT has had to be reinvented and is still explicitly not a cure. A best approximation of ‘new CBT’ is a treatment for dysautonomia for which beta blockers are more effective. You’re not the only person who is dismissive. But the evidence that you are wrong is already out there and constantly growing.

randomcarbloke 5y ago

>I don’t see much difference at all between what I have and Long Covid Nor do I, it's psychosomatic or depression, I expect those seeking these diagnoses will instead now claim to have "long covid".

cjbgkagh 5y ago
That is entirely false. There are now very clear diagnostic tests that can prove it’s false. The original proponents of psychosomatic (published in Lancet) have recently been forced to recant given the mountain of evidence against them. Unfortunately we are still living with the damage done from the original gaslighting. I can assure you doctors are no help with CFS/ME or Long COVID and I get no benefit from a diagnosis of either of them. I don’t have a formal diagnosis, there is no point as there is no help, nor would insurance cover treatments. The only difference is that LongCovid has happened to so many people at the same time that it’s almost impossible to ignore - although many people, institutions, and governments will definitely try to ignore it.
- randomcarbloke 5y ago
  >have recently been forced to recant given the mountain of evidence against them. They truly haven't, you need to keep up-to-date on Wessely. I always found the justification hilarious: "it's obviously a real condition because it responds so favourably to antidepressants and anxiolytics..." Yes, I wonder why... >The only difference is that LongCovid has happened to so many people at the same time that it’s almost impossible to ignore Just another social contagion, and a sexy one people have read about exhaustively for two years.
  - cjbgkagh 5y ago
    Why would I follow people who clearly don’t know what they are talking about. NICE guidelines now explicitly exclude exclude GET and CBT has had to be reinvented and is still explicitly not a cure. A best approximation of ‘new CBT’ is a treatment for dysautonomia for which beta blockers are more effective. You’re not the only person who is dismissive. But the evidence that you are wrong is already out there and constantly growing.