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What if I do need to go to a hospital, but don't want any information about me to be shared? Is that impossible? What are the ethical considerations for me, w
by verisimi 5y ago
What if I do need to go to a hospital, but don't want any information about me to be shared? Is that impossible? What are the ethical considerations for me, when I disagree entirely to any data collection? Must I be coerced against my will into providing to Google or whoever regardless?
The point I am raising is that there is an embedded assumption that this info should even be available for deep learning to work over.
- sjg007 5y agoPay cash maybe and even then it might be in the terms of service of the clinic or hospital that they can use or share your data as needed. It may be deidentified as well. An alternative is to check in under an assumed name which many famous people do. There are concierge doctors as well that probably have stricter guidelines.
- paulmd 5y agoFor transmissible/infectious diseases, this is certainly impossible, since states ingest case reports and lab data surrounding this and send digests to CDC. The term of interest would be "NEDSS reporting". https://www.cdc.gov/nndss/about/nedss.html https://www.cdc.gov/nndss/about/nedss.html