The PKU-registry article you linked explains how one can opt out of having one's sample stored after the genetic screening: > Den enskilde kan begära att begrä

The PKU-registry article you linked explains how one can opt out of having one's sample stored after the genetic screening: > Den enskilde kan begära att begränsa hur provet får användas eller få sitt blodprov kasserat. Kassering innebär enligt biobankslagen att provet kastas eller anonymiseras > The individual can ask to restrict how the sample may be used or have it discarded. According to the biobank law, discarding a sample involves either destroying or anonymizing it.